It’s a technical term
I was reading outside my discipline, which is always good for a surprise. It was a paper titled “Something’s Going on Here: Psychological Predictors of Belief in Conspiracy TheoriesR…
stimpunks·freethoughtblogs.com·
Open Society
stimpunks·freethoughtblogs.com·
How a DEI Leader at Automattic Creates a Culture of Allyship
“I wholeheartedly feel like my work in HR and DEI is life-changing.”
stimpunks·themuse.com·
Pathological Demand Avoidance (PDA)
Information and support strategies for adults, parents, carers, and professionals on Pathological Demand Avoidance (PDA).
stimpunks·autism.org.uk·Pathological demand avoidance: my thoughts on looping effects and commodification of autism
Hacking suggests autism is a human kind, and has used autism to discuss their evolution over time. Looping effects caused the autism human kind to evolve since 1995, with people identifying with th...
stimpunks·tandfonline.com·
“Can’t help won’t” — Pathological Demand Avoidance syndrome
A complex syndrome on the autism spectrum is receiving increasing attention from researchers and educators — those with the condition and…
stimpunks·medium.com·
Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices? | Woods | Autonomy, the Critical Journal of Interdisciplinary Autism Studies
Pathological Demand Avoidance: Is it time to move beyond the pathological need to not to develop more inclusive pedagogical practices?
stimpunks·larry-arnold.net·
(PDF) Neurodiversity Movement and Rational Demand Avoidance: The clash of 2 competing biopower technologies in action
PDF | This is a presentation I delivered at Participatory Autism Research Collective Critical Autism Studies Conference 2018. It builds on the work of... | Find, read and cite all the research you need on ResearchGate
stimpunks·researchgate.net·
WHAT IS CREDIBLE ABOUT DEMAND AVOIDANCE PHENOMENA (DAP)?
WHAT IS CREDIBLE ABOUT DEMAND AVOIDANCE PHENOMENA (DAP)? Edit. There maybe things that I think are credible that I forgot to include. An example would, I think it is credible DAPers are cond…
stimpunks·rationaldemandavoidance.com·
(PDF) Demand Avoidance Phenomena (Pathological Demand Avoidance): an ethical challenge to its orthodoxy.
PDF | We present a balanced ethical position for Demand Avoidance Phenomena (Pathological Demand Avoidance). We argue that it should be viewed as... | Find, read and cite all the research you need on ResearchGate
stimpunks·researchgate.net·
08TH OF MAY 2022 RECENT TWITTER REFLECTIONS & LATEST DAP DIAGRAMS.
08TH OF MAY 2022 RECENT TWITTER REFLECTIONS & LATEST DAP DIAGRAMS. Introduction. This is a short blog post to add my recent twitter musings on matters relating to Demand-Avoidance Phenomena (DA…
stimpunks·rationaldemandavoidance.com·Redefining Critical Autism Studies: a more inclusive interpretation
This article explores the definition of Critical Autism Studies and its inclusion in autistic scholarship. There has been critique of recent non-autistic literature for lacking autistic authorship,...
stimpunks·tandfonline.com·Redefining Critical Autism Studies: a more inclusive interpretation
This article explores the definition of Critical Autism Studies and its inclusion in autistic scholarship. There has been critique of recent non-autistic literature for lacking autistic authorship,...
stimpunks·tandfonline.com·Critical Reflections on the Pathological Demand Avoidance debate: A response to The Practice MK blog and discussion.
Critical Reflections on the Pathological Demand Avoidance debate: A response to The Practice MK blog and discussion. Introduction. This is a rejected article I wrote in July 2017; I have not…
In addition there are issues with the ideology of autism being used to support PDA, with it being a non-progressive medical model of disability (Leatherland and Chown 2015). For instance the demand behaviours of PDA are due to need to reduce anxiety (Newson et al 2003) and subsequently PDA is part of the autism, yet anxiety is not on the autism diagnostic criteria (American Psychological Association 2013; World Health Organisation 1992). Recently autism diagnoses are moving away from a categorisation approach to a dimensional approach, which PDA does not follow (Wood, 2017a); therefore it could be argued this recent research on PDA are not contributing to modern interpretations of autism. O’Nions et al (2014) and O’Nions et al (2016) are symptomatic of the underlying issues of Newson et al (2003) criteria, which were formulated in 1980 before widespread adoption of the triad of impairment and ignoring results from the exponential growth of autism research from the late 1990s (Lai et al 2014). More pertinently the recent PDA literature refers to the dated and mythical “typical” autism (Langton and Frederickson 2016; O’Nions et al 2016).
A key argument for need for PDA adjustments is that they are needed because individuals believed to have PDA display demand behaviours to avoid the anxiety caused by societal expectations. There is growing evidence from autistic academics and the autistic population that all autistic individuals’ mental health benefits from being in charge of their own lives, partially due to the pressures of conforming to societal demands (Milton and Moon 2012; Milton and Sims 2016; Stewart 2012; Woods 2017b). Autistic individuals also face additional societal pressures from psycho-emotional disablism (Milton 2013b; Milton and Lyte 2012; Stewart 2012; Woods 2017b), which factors into the higher suicide rates and potentially higher rates of self-harming for autistic individuals (Maddox et al 2017). The “need” for PDA is no more significant than the need for better support for the entire autistic population, which would likely benefit from experiencing PDA adjustments.
PDA could be blocking the development of more progressive social model inclusive education practices and therefore social justice for all stakeholders. This is as PDA is from a medical model of disability perspectives as PDA focuses on persons’ deviance from “typical autism” and the challenges this causes to other stakeholders (Langton and Frederickson 2016; Newson et al 2003; O’Nions et al 2014). Which is the opposite of the views of stakeholders in autism and wider inclusive education areas would like to see; more progressive social model adjustments (Dillon et al 2016; Hardy and Woodcock 2015; Milton 2013b; Pellicano et al 2014; Stewart 2012). PDA advocates are arguing for the use of a new label which is not needed to explain the actions of individuals (Dore 2016; Gillberg et al 2015; Langton and Frederickson 2016; Milton 2013a), this going against the notion that the UK education system is “needs-led” (Langton and Frederickson 2016). Subsequently PDA is fuelling the neoliberal infiltrated inclusive education discourse (Hardy and Woodcock 2015), further reducing the definition of the “mythical norm” (Milton et al 2016). In doing so PDA makes it harder for autism stakeholders to achieve social justice in education.
It can be argued that PDA is already a redundant label due to the lack of merit of a PDA diagnosis and vice versa; other labels describe its behaviours, it does not ensure understanding from individuals, support (Woods 2017a) or legal protection and its adjustments can already be implemented through other labels such as autism. It could be argued that if PDA was proposed today in the United Kingdom it would struggle to be taken seriously due to the fundamental flaws in the arguments for it. There are serious ethical concerns over the label, which have yet to be debated. It is my view that it is logical to support more adjustments & research for autism and other recognised SEND labels, including using PDA based adjustments for these labels.
stimpunks·rationaldemandavoidance.com·
(PDF) Rational (Pathological) Demand Avoidance: what it is not, what it could be & what it does.
PDF | This is a power point of the talk I delivered at the Participatory Autism Research Collective event, Critical Perspectives on Pathological Demand... | Find, read and cite all the research you need on ResearchGate
stimpunks·researchgate.net·
(PDF) An Interest Based Account (Monotropism theory) explanation of anxiety in Autism & a Demand Avoidance Phenomenon discussion.
PDF | Participatory Autism Research Collective (PARC) held an external stream to the Scottish Autism conference recently held in Glasgow on the... | Find, read and cite all the research you need on ResearchGate
stimpunks·researchgate.net·
Commentary: Demand Avoidance Phenomena, a manifold issue? Intolerance of uncertainty and anxiety as explanatory frameworks for extreme demand avoidance in children and adolescents – a commentary on Stuart et al. (2020)
Read the full article at doi: 10.1111/camh.12336 and response to this commentary at doi: 10.1111/camh.12376
stimpunks·acamh.onlinelibrary.wiley.com·
‘Natures answer to over-conformity’: deconstructing PDA
Abstract
Throughout its history autism has been primarily defined in terms of a pathologised deviancy from normative cognitive functionality, despite protestations to the contrary from autistic writers (Sinclair, 1993, Arnold, 2010, Milton, 2011). More recently however, …
This paper concludes by arguing that the label of PDA represents the medicalising and pathologising of behaviours that from an outsider perspective seem to be differentiated from what is deemed capable by autistic people, but could be seen as the behaviours of an autistic person who has gained a modicum of normative social skills and is simply asserting their agency. By pathologising such behaviour, one could unduly be blunting attempts at autistic self-advocacy.
stimpunks·pdasociety.org.uk·
Be Gay Do Crime
Be Gay Do Crime is a catchphrase and protest slogan used by activists, members and allies of the LGBTQIA+ community, promoting freedom from discrimination on the basis of sexual orientation or being non-cisgender.
stimpunks·knowyourmeme.com·
The alexithymia & autism guide » NeuroClastic
Alexithymia is so common in autism that it is commonly mistaken for autism itself. Find out what alexithymia is and how it presents itself in autism.
stimpunks·neuroclastic.com·
Alexithymia and Interoception
When I realized that wearing headphones had helped me with anxiety in multiple ways/multiple places, I tried to check in with my sensory environment at least every few hours every day. Setting a re…
stimpunks·autisticscienceperson.com·
On Using NonSpeaking, Minimally Speaking, Or Unreliably Speaking Over "Non-Verbal”: NonSpeakers Weigh In » NeuroClastic
"I prefer nonspeaking as I understand all language. Non-verbal suggests I don’t understand language and doesn’t represent how I love language."
stimpunks·neuroclastic.com·
Understanding Stigma in Autism: A Narrative Review and Theoretical Model | Autism in Adulthood
The experience of stigma by autistic people is relatively understudied, despite contributing to a range of poor outcomes and having an overarching impact on well-being. The current review of the literature synthesizes research to determine what is currently known and presents a theoretical model of autism stigma. Autism stigma is primarily influenced by a public and professional understanding of autism in combination with interpretation of visible autistic traits. Moderating factors include the quality and quantity of contact with autistic people, cultural factors, sex and gender, individual differences, and diagnostic disclosure. Stigma can reduce well-being as well as increase the presence of camouflaging behaviors, which mask autistic traits. Caregivers of autistic people can experience stigma by association, that is, affiliate stigma, which can impact their own well-being. A variety of interventions and approaches to reduce stigma are discussed, including “autism friendly” spaces, positive media representation, educational and psychosocial training for the public and professionals, as well as cultural and systemic shifts that foster inclusivity and recognize neurodiversity.
stimpunks·liebertpub.com·
Education about Autistic culture, the ND paradigm, and the ND movement – for medical professionals, by Autistic people
Join Autistic people from all over the world, committed to the de-stigmatisation of Autistic ways of being and other forms of neurodivergence, in support of the development and delivery of educatio…
stimpunks·autcollab.org·
Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain
ObjectivesAutism, attention deficit hyperactivity disorder (ADHD), and tic disorder (Tourette syndrome; TS) are neurodevelopmental conditions that frequently co-occur and impact psychological, social, and emotional processes. Increased likelihood of chronic physical symptoms, including fatigue and pain, are also recognized. The expression of joint hypermobility, reflecting a constitutional variant in connective tissue, predicts susceptibility to psychological symptoms alongside recognized physical symptoms. Here, we tested for increased prevalence of joint hypermobility, autonomic dysfunction, and musculoskeletal symptoms in 109 adults with neurodevelopmental condition diagnoses.MethodsRates of generalized joint hypermobility (GJH, henceforth hypermobility) in adults with a formal diagnosis of neurodevelopmental conditions (henceforth neurodivergent group, n = 109) were compared to those in the general population in UK. Levels of orthostatic intolerance and musculoskeletal symptoms were compared to a separate comparison group (n = 57). Age specific cut-offs for GJH were possible to determine in the neurodivergent and comparison group only.ResultsThe neurodivergent group manifested elevated prevalence of hypermobility (51%) compared to the general population rate of 20% and a comparison population (17.5%). Using a more stringent age specific cut-off, in the neurodivergent group this prevalence was 28.4%, more than double than the comparison group (12.5%). Odds ratio for pre...
In neurodivergent adults, there is a strong link between the expression of joint hypermobility, dysautonomia, and pain, more so than in the comparison group. Moreover, joint hypermobility mediates the link between neurodivergence and symptoms of dysautonomia and pain. Increased awareness and understanding of this association may enhance the management of core symptoms and allied difficulties in neurodivergent people, including co-occurring physical symptoms, and guide service delivery in the future.
stimpunks·frontiersin.org·
Evolution of a Theory: Polyvagal is Not Dead — Trauma Geek
I’ve been studying Polyvagal Theory (PVT) from primary sources and secondary summaries for about 5 years. This framework has allowed me to make sense of my own trauma symptoms and befriend my nervous system instead of working against it. I use PVT daily in my self-care strategies and in my relations
stimpunks·traumageek.com·
The Social Language Theory of Neurodivergence — Trauma Geek
We the neurodivergent are genetically different. We experience the world through a hypersensitive nervous system which informs every aspect of our thinking, our behavior, and our social values. The dominant social group labels our way of being in the world as disordered because they don’t understand
stimpunks·traumageek.com·
Polyvagal Neurodiversity Blog Project — Trauma Geek
stimpunks·traumageek.com·