“‘Everyone dies someday! Get out and live!’

I’ve lost count of how many people have said this to me. People who assume I’m ‘choosing’ to stay home in bed or who think fear of Covid is the only determining factor to my not socializing more.

This is NOT a choice 🧵/1”

Interview with @franhaddock_ who has Severe ME and Long COVID on BBC Sheffield (6 mins)

Interview is about being 98% bedbound and the new report on the prevalence of Long COVID and the inequalities it has highlighted. Also mentions #MECFS

“The severity and frequency of Long COVID is purposely obscured from public discussion as part of a continued political effort to normalize constant COVID exposure.

People who take precautions to avoid COVID are making the wise decision to protect themselves and their families; they are also safeguarding their ability to work and earn money in a society that disposes of people who cannot produce. It is a rational decision; in the case of Long COVID patients, it is a necessary one.

It is also, admittedly, a very difficult lifestyle to adopt and maintain.”