Shooting for the Moon: The $11 Billion Long COVID / ME/CFS / POTS / Lyme Moonshot - Health Rising
Great overview of Bernie Sanders’s Long Covid moonshot
Senators urge better access to disability payments for Long COVID patients
Several U.S. senators have called on the Social Security Administration to take steps to make it easier for people with long COVID to access disability benefits, actions that disability rights advocates and patients say are desperately needed.
Money over lives: The tragic case of Noah Lyles’ collapse at the Paris Olympics
"There is almost a complete blackout in the bourgeois media of the real state of the pandemic, with barely a word written or said about the deepening global wave of infections and the mounting societal toll of Long COVID."
We are sitting on a powder keg. 400 million in the world already have long covid (so far) just as the had predicted 100s of millions would need caregivers due to COVID. Each infection increases risk so by 3, 4, or 5 many will have major health issues, heart attacks, /1
Long COVID is still a problem, racking up a global cost of $1 trillion
“For months, governmental officials around the world have appeared to want to forgo discussing the specter of long COVID. As a new review makes clear, that is wishful thinking—and the latest COVID variants may well kick long COVID into overdrive, a scenario that researchers and experts have been warning about for some time.”
For months, governmental officials around the world have appeared to want to forgo discussing the specter of long COVID. As a new review makes clear, that is wishful thinking—and the latest COVID variants may well kick long COVID into overdrive, a scenario that researchers and experts have been warning about for some time.
This might be a long thread so bear with me.
Thread:
About 3 months ago I was diagnosed with POTS (postural orthostatic tachycardia syndrome) from long covid and I would like to share how difficult and frustrating it was to get diagnosed - every step of the way.
Long COVID science, research and policy
New Review of Long COVID: 400 million people impacted by a disorder that affects nearly every organ system, leading to an annual global economic toll of $1 trillion or 1% of the global GDP
The cumulative global incidence of long COVID is around 400 million individuals, which is estimated to have an annual economic impact of approximately $1 trillion
New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!
“New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!
It is written in plain language, so it's worth a read on its own, but I just want to pull out some highlights about what WE DO KNOW into a single thread...”
UPDATE: After advocates submitted thousands of comments, the rule passed!
US hospitals will be required to report key COVID, flu, and RSV hospitalization data again outside of public health emergencies, after initially ending the requirement earlier this year.
Advocacy works!
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
Detailed Long Covid anecdote
Long Covid Defined | NEJM
“The Covid-19 pandemic has been perceived mainly as a dangerous acute outbreak of infection that killed more than a million people in the United States and 7 million worldwide.1,2 However, in the pandemic’s wake, Covid-19 has left many millions more with a variety of chronic, systemic, and often disabling conditions collectively known as “long Covid.” In the United States alone, survey data indicate that approximately 7% of adults and more than 1% of children — numbering 15 to 20 million Americans and more than 60 million globally — have had long Covid.”
Long COVID: a clinical update
Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage.
Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage.
Thread on our new state of the science review on . Commissioned by , peer-reviewed, coauthored with , and Janko Nikolich. Link for free access is here (after 50 days that won’t work, then you’ll have to…
Long COVID: a clinical update
Post-COVID-19 condition (also known as long COVID) is generally defined as symptoms persisting for 3 months or more after acute COVID-19. Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage. The burden of this disease, both on the individual and on health systems and national economies, is high.
Post-COVID-19 condition (also known as long COVID) is generally defined as symptoms persisting for 3 months or more after acute COVID-19. Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage. The burden of this disease, both on the individual and on health systems and national economies, is high.
Frontiers | Deaths related to post-COVID in Italy: a national study based on death certificates
“Post-COVID, might be particularly severe and potentially life-threatening. However, little is known on the impact of post-COVID condition on mortality. Aim of the present study is to assess and quantify Post-COVID deaths in Italy in years 2020 and 2021, based on an analysis of death certificates.”
Post-COVID, might be particularly severe and potentially life-threatening. However, little is known on the impact of post-COVID condition on mortality. Aim of the present study is to assess and quantify Post-COVID deaths in Italy in years 2020 and 2021, based on an analysis of death certificates.
Long COVID puzzle pieces are falling into place – the picture is unsettling
“Since 2020, the condition known as long COVID-19 has become a widespread disability affecting the health and quality of life of millions of people across the globe and costing economies billions of dollars in reduced productivity of employees and an overall drop in the work force.
The intense scientific effort that long COVID sparked has resulted in more than 24,000 scientific publications, making it the most researched health condition in any four years of recorded human history.”
Since 2020, the condition known as long COVID-19 has become a widespread disability affecting the health and quality of life of millions of people across the globe and costing economies billions of dollars in reduced productivity of employees and an overall drop in the work force.
The intense scientific effort that long COVID sparked has resulted in more than 24,000 scientific publications, making it the most researched health condition in any four years of recorded human history.
Relationship between acute SARS-CoV-2 viral clearance with Long COVID Symptoms: a cohort study
NEW study finds that the longer the time from peak viral load to viral RNA clearance during acute COVID-19, the higher risk of developing #LongCOVID.
“Debilitating a Generation”: Expert Warns That Long COVID May Eventually Affect Most Americans
“Think you’ve grasped the full extent of COVID’s ongoing impact? Think again. As Americans shrug off vaccines and forget indoor air quality, the virus stealthily continues its destructive path. This was pretty much inevitable without new guidance urging a change in strategy and nobody telling us the full truth.
The danger is clear and present: COVID isn’t merely a respiratory illness; it’s a multi-dimensional threat impacting brain function, attacking almost all of the body’s organs, producing elevated risks of all kinds, and weakening our ability to fight off other diseases. Reinfections are thought to produce cumulative risks, and Long COVID is on the rise. Unfortunately, Long COVID is now being considered a long-term chronic illness — something many people will never fully recover from.”
“Debilitating a Generation”: Expert Warns That Long COVID May Eventually Affect Most Americans
$10 billion long Covid ‘moonshot’ is being floated by Bernie Sanders
$10 billion long Covid ‘moonshot’ is being floated by Bernie Sanders
$10 billion long Covid ‘moonshot’ is being floated by Bernie Sanders
Blood abnormalities found people long covid
Blood abnormalities found in people with Long Covid
Study implicates lack of key hormone, damage to immune cells, and reawakened viruses.
Unite against COVID-19 on Twitter
Every time you catch COVID-19, your risk of other severe issues starts to rise.
Research is starting to show that with reinfection, your chance of serious issues such as diabetes, mental health issues, and chronic fatigue goes up.
Adam on Twitter
Clip from today's BBC Morning Live segment on #LongCovid
Dr @xandvt talks about a new study that found #LongCovid has a greater impact on quality of life than some Cancers.
WesElyMD on Twitter
1/🧵 Long COVID’s “Disability Roulette”
🔺No longer a mass Death event… 🔺COVID-19 is an ongoing mass #Disability event 🔺You & I might get #LongCOVID 🔺But society is yawning
This thread unpacks science, policy & hope.
Post-COVID-19 Syndrome in Non-Hospitalized Individuals: Healthcare Situation 2 Years after SARS-CoV-2 Infection
“In general, the frequency of COVID-19 related symptoms was higher at 26 months after the onset of the disease than at 9 months after.”
🔴 tohmes on Twitter
1/11 SARS-CoV-2 & rapid loss of acquired immunity:
a 🧵 collecting various papers & results leading up to an idea:
rapid waning is
- actually chronic antigen exposure of a persistent SARS-CoV-2 infection
- leading to depletion/exhaustion of
- SC2 acquired immune memory
Large study provides scientists with deeper insight into long COVID
"Initial findings from a study of nearly 10,000 Americans, many of whom had COVID-19, have uncovered new details about long COVID, the post-infection set of conditions that can affect nearly every tissue and organ in the body."
Long COVID: major findings, mechanisms and recommendations
Long COVID: major findings, mechanisms and recommendations
Mary Fernando MD on Twitter
Truth is the ground beneath our feet.
Saying it’s OK to get COVID is quicksand.
Here’s solid ground: “post-acute sequelae of COVID-19…is a multisystemic condition comprising often severe symptoms…[with an] incidence of 10% of infected people.”
Review highlights effects of SARS-CoV-2 infection on multiple organ systems
"new review article published in the Bosnian Journal of Basic Medical Sciences offers valuable insights into the multi-organ system damage caused by the SARS-CoV-2 virus"
More than 65 million people around the world may have long COVID
"Worldwide, at least 65 million people have long COVID, and that is likely an underestimate, finds a review article published late last week in Nature Reviews Microbiology."