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Perspective: I Thought I Was Protected but I Still Got Long Covid
Perspective: I Thought I Was Protected but I Still Got Long Covid
“I was aware of Long COVID since I had persistent loss of taste and smell going back to my first infection, but I never really considered it to be Long COVID, as it did not have a major effect on my life. The third infection is really what tipped me into Long COVID. Since then, I've had intermittent chest pain, heart palpitations, various neurological issues (face numbness, buzzing in the feet), joint pain, anxiety, issues with my vision, fatigue, complete alcohol and caffeine intolerance. I alternate between good weeks and bad weeks,”
#long covid#Anecdote#organ damage
·johnsnowproject.org·
Perspective: I Thought I Was Protected but I Still Got Long Covid
Covid disabled me, took away my entire life. Reinfection made me a lot sicker, twice. Experts warn about reinfection and covid isn't gone.
Covid disabled me, took away my entire life. Reinfection made me a lot sicker, twice. Experts warn about reinfection and covid isn't gone.

“Covid disabled me, took away my entire life. Reinfection made me a lot sicker, twice. Experts warn about reinfection and covid isn't gone.

Yet nobody who comes to visit me masks or tests or even asks me what precaution they should take.”

#long covid#Anecdote
·x.com·
Covid disabled me, took away my entire life. Reinfection made me a lot sicker, twice. Experts warn about reinfection and covid isn't gone.
So you’ve got Covid again? Here’s what to do about it
So you’ve got Covid again? Here’s what to do about it

Understatement: “…getting multiple Covid infections increases the chance of short- and long-term effects on the body, including the heart and lungs. So, even if we can’t totally eliminate our risk of catching it, it’s still worth trying to dodge Covid as best we can.”

getting multiple Covid infections increases the chance of short- and long-term effects on the body, including the heart and lungs. So, even if we can’t totally eliminate our risk of catching it, it’s still worth trying to dodge Covid as best we can.
#organ damage#long covid
·inews.co.uk·
So you’ve got Covid again? Here’s what to do about it
605eng
605eng

A study in Argentina found that 68% of the 2,030 health workers reported having #longcovid.

The highest risks were linked to severe initial symptoms, being a nurse, working multiple jobs, and working in emergency areas

#nurses#long covid
·medicinabuenosaires.com·
605eng
Disabled people's exclusion from indoor spaces is a civil rights violation, not an annoyance
Disabled people's exclusion from indoor spaces is a civil rights violation, not an annoyance

“The severity and frequency of Long COVID is purposely obscured from public discussion as part of a continued political effort to normalize constant COVID exposure.

People who take precautions to avoid COVID are making the wise decision to protect themselves and their families; they are also safeguarding their ability to work and earn money in a society that disposes of people who cannot produce. It is a rational decision; in the case of Long COVID patients, it is a necessary one.

It is also, admittedly, a very difficult lifestyle to adopt and maintain.”

The severity and frequency of Long COVID is purposely obscured from public discussion as part of a continued political effort to normalize constant COVID exposure. People who take precautions to avoid COVID are making the wise decision to protect themselves and their families; they are also safeguarding their ability to work and earn money in a society that disposes of people who cannot produce. It is a rational decision; in the case of Long COVID patients, it is a necessary one. It is also, admittedly, a very difficult lifestyle to adopt and maintain.
#disabled#masks#long covid
·thegauntlet.news·
Disabled people's exclusion from indoor spaces is a civil rights violation, not an annoyance
Scientists are piecing together the puzzle of long COVID. Here's what to know
Scientists are piecing together the puzzle of long COVID. Here's what to know

“A large study published in early 2024 showed that even people who had a mild SARS-CoV-2 infection still experienced new health problems related to COVID-19 in the third year after the initial infection.

Such findings parallel other research showing that the virus persists in various organ systems for months or years after COVID-19 infection. And research is showing that immune responses to the infection are still evident two to three years after a mild infection. Together, these studies may explain why a SARS-CoV-2 infection years ago could still cause new health problems long after the initial infection.”

A large study published in early 2024 showed that even people who had a mild SARS-CoV-2 infection still experienced new health problems related to COVID-19 in the third year after the initial infection. Such findings parallel other research showing that the virus persists in various organ systems for months or years after COVID-19 infection. And research is showing that immune responses to the infection are still evident two to three years after a mild infection. Together, these studies may explain why a SARS-CoV-2 infection years ago could still cause new health problems long after the initial infection.
#long covid#Viral Persistence#organ damage
·pbs.org·
Scientists are piecing together the puzzle of long COVID. Here's what to know
One of my best friends that I've known for 8 years developed long COVID after his third COVID infection in late 2023. Like me, he continues to work a full time tech job, but struggles outside of work. I think one of the more underappreciated aspects of it is the loneliness. "I…
One of my best friends that I've known for 8 years developed long COVID after his third COVID infection in late 2023. Like me, he continues to work a full time tech job, but struggles outside of work. I think one of the more underappreciated aspects of it is the loneliness. "I…
#Long Covid#Anecdote
·x.com·
One of my best friends that I've known for 8 years developed long COVID after his third COVID infection in late 2023. Like me, he continues to work a full time tech job, but struggles outside of work. I think one of the more underappreciated aspects of it is the loneliness. "I…
Long COVID cost the Australian economy almost $10 billion in 2022 – new research
Long COVID cost the Australian economy almost $10 billion in 2022 – new research

“The World Health Organization (WHO) estimates 10–20% of people suffer from long COVID after they recover from the initial COVID infection.

Common symptoms include fatigue, shortness of breath and “brain fog”, but more than 200 different symptoms have been linked to long COVID. The condition affects daily functioning and can be debilitating.

Our research, published today, estimated the economic burden of long COVID in Australia. We calculated long COVID cost the Australian economy almost A$10 billion in 2022 alone.”

The World Health Organization (WHO) estimates 10–20% of people suffer from long COVID after they recover from the initial COVID infection. Common symptoms include fatigue, shortness of breath and “brain fog”, but more than 200 different symptoms have been linked to long COVID. The condition affects daily functioning and can be debilitating. Our research, published today, estimated the economic burden of long COVID in Australia. We calculated long COVID cost the Australian economy almost A$10 billion in 2022 alone.
#Long Covid
·theconversation.com·
Long COVID cost the Australian economy almost $10 billion in 2022 – new research
Senators urge better access to disability payments for Long COVID patients
Senators urge better access to disability payments for Long COVID patients
Several U.S. senators have called on the Social Security Administration to take steps to make it easier for people with long COVID to access disability benefits, actions that disability rights advocates and patients say are desperately needed.
#Long Covid
·insurancenewsnet.com·
Senators urge better access to disability payments for Long COVID patients
We are sitting on a powder keg. 400 million in the world already have long covid (so far) just as the had predicted 100s of millions would need caregivers due to COVID. Each infection increases risk so by 3, 4, or 5 many will have major health issues, heart attacks, /1
We are sitting on a powder keg. 400 million in the world already have long covid (so far) just as the had predicted 100s of millions would need caregivers due to COVID. Each infection increases risk so by 3, 4, or 5 many will have major health issues, heart attacks, /1
#Long Covid
·x.com·
We are sitting on a powder keg. 400 million in the world already have long covid (so far) just as the had predicted 100s of millions would need caregivers due to COVID. Each infection increases risk so by 3, 4, or 5 many will have major health issues, heart attacks, /1
Long COVID is still a problem, racking up a global cost of $1 trillion
Long COVID is still a problem, racking up a global cost of $1 trillion
“For months, governmental officials around the world have appeared to want to forgo discussing the specter of long COVID. As a new review makes clear, that is wishful thinking—and the latest COVID variants may well kick long COVID into overdrive, a scenario that researchers and experts have been warning about for some time.”
For months, governmental officials around the world have appeared to want to forgo discussing the specter of long COVID. As a new review makes clear, that is wishful thinking—and the latest COVID variants may well kick long COVID into overdrive, a scenario that researchers and experts have been warning about for some time.
#Long Covid
·fortune.com·
Long COVID is still a problem, racking up a global cost of $1 trillion
This might be a long thread so bear with me.
This might be a long thread so bear with me.

Thread:

About 3 months ago I was diagnosed with POTS (postural orthostatic tachycardia syndrome) from long covid and I would like to share how difficult and frustrating it was to get diagnosed - every step of the way.

#Long Covid#POTS#Anecdote
·x.com·
This might be a long thread so bear with me.
Long COVID science, research and policy
Long COVID science, research and policy
New Review of Long COVID: 400 million people impacted by a disorder that affects nearly every organ system, leading to an annual global economic toll of $1 trillion or 1% of the global GDP
The cumulative global incidence of long COVID is around 400 million individuals, which is estimated to have an annual economic impact of approximately $1 trillion
#Long Covid#Ziyad Al-Aly#Post-Acute Conditions#analysis
·nature.com·
Long COVID science, research and policy
New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!
New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!

“New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!

It is written in plain language, so it's worth a read on its own, but I just want to pull out some highlights about what WE DO KNOW into a single thread...”

#Long Covid
·x.com·
New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
Detailed Long Covid anecdote
#Long Covid#Anecdote
·x.com·
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
Long Covid Defined | NEJM
Long Covid Defined | NEJM
“The Covid-19 pandemic has been perceived mainly as a dangerous acute outbreak of infection that killed more than a million people in the United States and 7 million worldwide.1,2 However, in the pandemic’s wake, Covid-19 has left many millions more with a variety of chronic, systemic, and often disabling conditions collectively known as “long Covid.” In the United States alone, survey data indicate that approximately 7% of adults and more than 1% of children — numbering 15 to 20 million Americans and more than 60 million globally — have had long Covid.”
#Long Covid
·nejm.org·
Long Covid Defined | NEJM
Long COVID: a clinical update
Long COVID: a clinical update
Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage.
Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage.
#Long Covid
·sciencedirect.com·
Long COVID: a clinical update