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One of my best friends that I've known for 8 years developed long COVID after his third COVID infection in late 2023. Like me, he continues to work a full time tech job, but struggles outside of work. I think one of the more underappreciated aspects of it is the loneliness. "I…
One of my best friends that I've known for 8 years developed long COVID after his third COVID infection in late 2023. Like me, he continues to work a full time tech job, but struggles outside of work. I think one of the more underappreciated aspects of it is the loneliness. "I…
·x.com·
One of my best friends that I've known for 8 years developed long COVID after his third COVID infection in late 2023. Like me, he continues to work a full time tech job, but struggles outside of work. I think one of the more underappreciated aspects of it is the loneliness. "I…
Long COVID cost the Australian economy almost $10 billion in 2022 – new research
Long COVID cost the Australian economy almost $10 billion in 2022 – new research

“The World Health Organization (WHO) estimates 10–20% of people suffer from long COVID after they recover from the initial COVID infection.

Common symptoms include fatigue, shortness of breath and “brain fog”, but more than 200 different symptoms have been linked to long COVID. The condition affects daily functioning and can be debilitating.

Our research, published today, estimated the economic burden of long COVID in Australia. We calculated long COVID cost the Australian economy almost A$10 billion in 2022 alone.”

The World Health Organization (WHO) estimates 10–20% of people suffer from long COVID after they recover from the initial COVID infection. Common symptoms include fatigue, shortness of breath and “brain fog”, but more than 200 different symptoms have been linked to long COVID. The condition affects daily functioning and can be debilitating. Our research, published today, estimated the economic burden of long COVID in Australia. We calculated long COVID cost the Australian economy almost A$10 billion in 2022 alone.
·theconversation.com·
Long COVID cost the Australian economy almost $10 billion in 2022 – new research
Senators urge better access to disability payments for Long COVID patients
Senators urge better access to disability payments for Long COVID patients
Several U.S. senators have called on the Social Security Administration to take steps to make it easier for people with long COVID to access disability benefits, actions that disability rights advocates and patients say are desperately needed.
·insurancenewsnet.com·
Senators urge better access to disability payments for Long COVID patients
We are sitting on a powder keg. 400 million in the world already have long covid (so far) just as the had predicted 100s of millions would need caregivers due to COVID. Each infection increases risk so by 3, 4, or 5 many will have major health issues, heart attacks, /1
We are sitting on a powder keg. 400 million in the world already have long covid (so far) just as the had predicted 100s of millions would need caregivers due to COVID. Each infection increases risk so by 3, 4, or 5 many will have major health issues, heart attacks, /1
·x.com·
We are sitting on a powder keg. 400 million in the world already have long covid (so far) just as the had predicted 100s of millions would need caregivers due to COVID. Each infection increases risk so by 3, 4, or 5 many will have major health issues, heart attacks, /1
Long COVID is still a problem, racking up a global cost of $1 trillion
Long COVID is still a problem, racking up a global cost of $1 trillion
“For months, governmental officials around the world have appeared to want to forgo discussing the specter of long COVID. As a new review makes clear, that is wishful thinking—and the latest COVID variants may well kick long COVID into overdrive, a scenario that researchers and experts have been warning about for some time.”
For months, governmental officials around the world have appeared to want to forgo discussing the specter of long COVID. As a new review makes clear, that is wishful thinking—and the latest COVID variants may well kick long COVID into overdrive, a scenario that researchers and experts have been warning about for some time.
·fortune.com·
Long COVID is still a problem, racking up a global cost of $1 trillion
This might be a long thread so bear with me.
This might be a long thread so bear with me.

Thread:

About 3 months ago I was diagnosed with POTS (postural orthostatic tachycardia syndrome) from long covid and I would like to share how difficult and frustrating it was to get diagnosed - every step of the way.

·x.com·
This might be a long thread so bear with me.
Long COVID science, research and policy
Long COVID science, research and policy
New Review of Long COVID: 400 million people impacted by a disorder that affects nearly every organ system, leading to an annual global economic toll of $1 trillion or 1% of the global GDP
The cumulative global incidence of long COVID is around 400 million individuals, which is estimated to have an annual economic impact of approximately $1 trillion
·nature.com·
Long COVID science, research and policy
New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!
New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!

“New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!

It is written in plain language, so it's worth a read on its own, but I just want to pull out some highlights about what WE DO KNOW into a single thread...”

·x.com·
New interdisciplinary review was published on current Long COVID science, with a roadmap for science and policy!
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
Detailed Long Covid anecdote
·x.com·
1 in 37 Americans have COVID. This means that there are ~300K ppl who have COVID right now that will develop long COVID, just as I did. This is what it's like to get long COVID as a healthy young person, and what treatments are available when you have $$ and great insurance:
Long Covid Defined | NEJM
Long Covid Defined | NEJM
“The Covid-19 pandemic has been perceived mainly as a dangerous acute outbreak of infection that killed more than a million people in the United States and 7 million worldwide.1,2 However, in the pandemic’s wake, Covid-19 has left many millions more with a variety of chronic, systemic, and often disabling conditions collectively known as “long Covid.” In the United States alone, survey data indicate that approximately 7% of adults and more than 1% of children — numbering 15 to 20 million Americans and more than 60 million globally — have had long Covid.”
·nejm.org·
Long Covid Defined | NEJM
Long COVID: a clinical update
Long COVID: a clinical update
Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage.
Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage.
·sciencedirect.com·
Long COVID: a clinical update
Long COVID: a clinical update
Long COVID: a clinical update
Post-COVID-19 condition (also known as long COVID) is generally defined as symptoms persisting for 3 months or more after acute COVID-19. Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage. The burden of this disease, both on the individual and on health systems and national economies, is high.
Post-COVID-19 condition (also known as long COVID) is generally defined as symptoms persisting for 3 months or more after acute COVID-19. Long COVID can affect multiple organ systems and lead to severe and protracted impairment of function as a result of organ damage. The burden of this disease, both on the individual and on health systems and national economies, is high.
·thelancet.com·
Long COVID: a clinical update
Frontiers | Deaths related to post-COVID in Italy: a national study based on death certificates
Frontiers | Deaths related to post-COVID in Italy: a national study based on death certificates
“Post-COVID, might be particularly severe and potentially life-threatening. However, little is known on the impact of post-COVID condition on mortality. Aim of the present study is to assess and quantify Post-COVID deaths in Italy in years 2020 and 2021, based on an analysis of death certificates.”
Post-COVID, might be particularly severe and potentially life-threatening. However, little is known on the impact of post-COVID condition on mortality. Aim of the present study is to assess and quantify Post-COVID deaths in Italy in years 2020 and 2021, based on an analysis of death certificates.
·frontiersin.org·
Frontiers | Deaths related to post-COVID in Italy: a national study based on death certificates
Long COVID puzzle pieces are falling into place – the picture is unsettling
Long COVID puzzle pieces are falling into place – the picture is unsettling

“Since 2020, the condition known as long COVID-19 has become a widespread disability affecting the health and quality of life of millions of people across the globe and costing economies billions of dollars in reduced productivity of employees and an overall drop in the work force.

The intense scientific effort that long COVID sparked has resulted in more than 24,000 scientific publications, making it the most researched health condition in any four years of recorded human history.”

Since 2020, the condition known as long COVID-19 has become a widespread disability affecting the health and quality of life of millions of people across the globe and costing economies billions of dollars in reduced productivity of employees and an overall drop in the work force. The intense scientific effort that long COVID sparked has resulted in more than 24,000 scientific publications, making it the most researched health condition in any four years of recorded human history.
·theconversation.com·
Long COVID puzzle pieces are falling into place – the picture is unsettling
“Debilitating a Generation”: Expert Warns That Long COVID May Eventually Affect Most Americans
“Debilitating a Generation”: Expert Warns That Long COVID May Eventually Affect Most Americans

“Think you’ve grasped the full extent of COVID’s ongoing impact? Think again. As Americans shrug off vaccines and forget indoor air quality, the virus stealthily continues its destructive path. This was pretty much inevitable without new guidance urging a change in strategy and nobody telling us the full truth.

The danger is clear and present: COVID isn’t merely a respiratory illness; it’s a multi-dimensional threat impacting brain function, attacking almost all of the body’s organs, producing elevated risks of all kinds, and weakening our ability to fight off other diseases. Reinfections are thought to produce cumulative risks, and Long COVID is on the rise. Unfortunately, Long COVID is now being considered a long-term chronic illness — something many people will never fully recover from.”

“Debilitating a Generation”: Expert Warns That Long COVID May Eventually Affect Most Americans
·ineteconomics.org·
“Debilitating a Generation”: Expert Warns That Long COVID May Eventually Affect Most Americans
Unite against COVID-19 on Twitter
Unite against COVID-19 on Twitter

Every time you catch COVID-19, your risk of other severe issues starts to rise.

Research is starting to show that with reinfection, your chance of serious issues such as diabetes, mental health issues, and chronic fatigue goes up.

·twitter.com·
Unite against COVID-19 on Twitter