I spoke to recently about my experience with Long Covid. I feel very grateful to be able to tell my story - so many people are suffering without a voice or the support they need. Progress is happening but *so* much more needs to be done.
Long Covid/PASC (general)
Antecedent and persistent symptoms in COVID-19 and other respiratory illnesses: insights from prospectively collected data in the BRACE trial
“Healthcare workers with COVID-19 experienced more severe and longer-lasting symptoms than those with non-COVID-19 respiratory illnesses, with a higher proportion meeting the WHO or NICE definitions of PACS. Age, chronic respiratory disease, and pre-existing symptoms increased the risk of developing PACS following COVID-19.”
Long-COVID rate among disabled people double that of able-bodied | CIDRAP
Long-COVID rate among disabled people double that of able-bodied
People with disabilities are also more likely to have severe COVID-19, face treatment refusals, and be hospitalized, the researchers say.
Long Covid: High economic burden justifies further preventive efforts | PHCC
“Nevertheless, the (NZ) Government(s) can take immediate action to reduce this joint health and economic burden by improving Covid vaccination eligibility and coverage and intensifying interventions that reduce community spread of Covid-19, including improvements in ventilation and air filtration in workplaces, schools, and other public settings."
Long COVID: A Major Public Health Issue : American Journal of Physical Medicine & Rehabilitation
“Our ‘new normal’ should not include at least 11% of the population falling chronically ill with long Covid after each infection…
…The narrative that we are back to normal.. is not based in reality."
🚨NYC department of health sends email blast to doctors all about #longcovid 🚨#greenscreen #maskup #masktok
NYC Dept. of Health sends comprehensive email blast to ALL doctors about Long Covid!
Aai letter to senator sanders endorsing long covid legislation 090424
AAI has written to @SenSanders to offer support for his recently introduced legislation, the "Long COVID Research Moonshot Act" which would, among other things, provide NIH with $1 billion/year for 10 years to support Long COVID research.
Read it here:
Towards an understanding of physical activity-induced post-exertional malaise: Insights into microvascular alterations and immunometabolic interactions in post-COVID condition and myalgic encephalomyelitis/chronic fatigue syndrome
"Upon physical activity, affected patients exhibit reduced systemic oxygen extraction & oxidative phosphorylation capacity.. these are mediated by dysfunctions in mitochondria & microcirculation.. maintained by.. immune activation."
Eighties pop pioneer looks unrecognisable - but who is it?
Simply Red singer Mick “revealed he's suffering with long COVID and is struggling with the after-effects of the virus.
Speaking to The Sun, Mick told how he suffers with heart palpitations and insomnia, explaining how he often wakes up in the middle of the night 'with my heart going ba-boom, ba-boom.'”
Last year, Mick revealed he's suffering with long COVID and is struggling with the after-effects of the virus.
Speaking to The Sun, Mick told how he suffers with heart palpitations and insomnia, explaining how he often wakes up in the middle of the night 'with my heart going ba-boom, ba-boom.'
In 2022 the sensible warned that hundreds of millions will have long Covid, children will start struggling in school, life expectancy will drop and excess deaths will soar if we let Covid rip. We did and all that came true. What do they think will happen in the next two years?
Many of us started warning in 2021.
📢 The popular drag artist Themme Fatale has announced their retirement due to Long COVID:
“The popular drag artist Themme Fatale has announced their retirement due to Long COVID:
“That’s all folks: Live, laugh, look out for each other during a mass disabling event.”
Jane's Addiction's Dave Navarro Speaks Of His Battle With Long COVID - Theprp.com
“…not feeling like I had recovered, which led to being home quite a bit, which led to isolation, which led to depression, all those kinds of things. And it was just a pretty miserable experience for several years. And going to different doctors, trying different methods, holistic methods, Western methods. Some doctors claim that they’re specialists. Others claim that there is no way to test for long Covid, and then there was still a lot of skepticism about it being a real thing, at the time.”
not feeling like I had recovered, which led to being home quite a bit, which led to isolation, which led to depression, all those kinds of things. And it was just a pretty miserable experience for several years. And going to different doctors, trying different methods, holistic methods, Western methods. Some doctors claim that they’re specialists. Others claim that there is no way to test for long Covid, and then there was still a lot of skepticism about it being a real thing, at the time.
What to know about the disabled during the pandemic | The Answer - YouTube
“It’s not over. And you are leaving people behind.”
The pandemic's ongoing impact on disabled people.
Leeds long Covid sufferer's call for better support
“A doctor from Leeds who developed long Covid and the debilitating effects of ME has said NHS patients like her have been ‘left to rot’.”
Breakthrough in Long COVID: An investigator-initiated trial (IIT) with Hyundai Bioscience's Xafty by UCSD
(So of course we will probably never get access to this.)
“The goal of this study is to confirm that niclosamide can solve the complex symptoms of Long COVID through multiple mechanisms such as virus suppression, inflammation suppression, and neuroprotection. We hope that the clinical trial will be successful and provide a practical treatment option for Long COVID patients, which will be historic."
The goal of this study is to confirm that niclosamide can solve the complex symptoms of Long COVID through multiple mechanisms such as virus suppression, inflammation suppression, and neuroprotection. We hope that the clinical trial will be successful and provide a practical treatment option for Long COVID patients, which will be historic."
For people with severe Long COVID, medical care is out of reach - The Sick Times
“People with Long COVID who are unable to leave their beds find accessing doctors and treatments nearly impossible.”
People with Long COVID who are unable to leave their beds find accessing doctors and treatments nearly impossible.
COVID may trigger chronic fatigue syndrome
Long Covid by another name
“Kaiser Permanente study finds 14% of people living with chronic fatigue-like syndrome developed it after an episode of COVID”
Defining long COVID using a population-based SARS-CoV-2 survey in California
Long covid is more prevalent in those who have had multiple infections. Hazard ratio: 2.07, or a doubling of risk.
This is long COVID. This is in your future if you don't mask. In 6 COIVID infects most people will have long Covid.
“This is long COVID. This is in your future if you don't mask. In 6 COIVID infects most people will have long Covid.”
Long COVID questions and answers
“Some people continue to experience health problems long after having COVID-19. Understand the possible symptoms and risk factors for post-COVID-19 syndrome.”
Some people continue to experience health problems long after having COVID-19. Understand the possible symptoms and risk factors for post-COVID-19 syndrome.
COVID-19 longer-term symptoms among Canadian adults - Fall 2023 report - Public Health Agency of Canada - Canada.ca
Full report showing 16.7% of Canadian adults report Long Covid post SARS-CoV-2 infection
Understanding Long COVID: Symptom Awareness.
After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it? : r/AskReddit
Go to AskReddit r/AskReddit jnny_lkahohfa Join After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it?
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After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it?
Most of the people that are coming to the clinics now are people who got Long Covid upon reinfection. Their first infection was fine, but they developed Long Covid upon reinfection. Immunity wanes. Ziyad Al-Aly MD
“Most of the people that are coming to the #LongCovid clinics now are people who got Long Covid upon reinfection. Their first infection was fine, but they developed Long Covid upon reinfection. Immunity wanes. Ziyad Al-Aly MD:
Every COVID Infection Increases Your Risk of Long COVID, Study Warns
Every COVID Infection Increases Your Risk of Long COVID, Study Warns
Cracking the mystery of long covid | The Big Story
Every COVID Infection Increases Your Risk of Long COVID — cracking the mystery
I've had a message from a friend, but it's really hard to know how to share it.
“Their words, and I quote them directly ‘People need to know that this isn't just tiredness and brain fog. It's killing us. Long Covid is killing us.’”
MITOCHONDRIA and SARS-COV-2 😨😨😨
“MITOCHONDRIA and SARS-COV-2 😨😨😨 (1st part)
When SARS-CoV-2 impacts mitochondria, the ENERGY-PRODUCING CENTERS of our CELLS, the effects on our body is significant and severe. Two studies released this week enhance our understanding of these occurrences.”
SARS-COV-2 and MITOCHONDRIA
“SARS-COV-2 and MITOCHONDRIA (2nd part) "Aging mitochondria in the context of SARS-CoV-2: exploring interactions and implications" A very interesting review
Frontiers | Aging Mitochondria in the Context of SARS-CoV-2: Exploring Interactions and Implications
“Aging mitochondria in the context of SARS-CoV-2: exploring interactions and implications”
Aging mitochondria in the context of SARS-CoV-2: exploring interactions and implications