Now offline: Government resources about Long COVID as a disability - The Sick Times
Long Covid/PASC (general)
Gaslit and forgotten: The silent struggle of Long Covid sufferers whom the world has ignored - DFA
Long Covid patients in South Africa face lacking treatment and gaslighting:
“It’s so painful to be dismissed as mentally ill when you physically just can’t function.”
Thread by @spoonfulofhan on Thread Reader App
“Hi, I’m Hannah. This is my story about COVID changing my life. This will be a thread, so here we go:
I got COVID in 2020 (during the first wave, months and months before the vaccine was released) at the age of 23. I am now 28 years old, and I spend every day in a bed.”
Hi, I’m Hannah. This is my story about COVID changing my life. This will be a thread, so here we go:
I got COVID in 2020 (during the first wave, months and months before the vaccine was released) at the age of 23. I am now 28 years old, and I spend every day in a bed.
Correlation of Interferons and Autoimmune Aspects in Long COVID-19 Patients | International Immunology | Oxford Academic
study of 39 Long COVID patients found elevated interferon activity and autoimmune markers, including anti-dsDNA and anti-Sm antibodies, similar to lupus.
Researchers propose an interferon-driven autoimmune mechanism for Long COVID.
NIH must address the twin crises of long Covid and ME/CFS — together
Vaccination prior to SARS-CoV-2 infection does not affect the neurologic manifestations of long COVID
“Vaccination prior to SARS-CoV-2 infection does not affect the neurologic manifestations of long COVID”
Long COVID appears to be driven by ‘long infection’. Here’s what the science says
Women 40 to 55 face higher long COVID risk than men, study finds
“The peer-reviewed study, led by the University of Texas Health Science Center, observed 12,276 people and found females had a "significantly higher" risk of long-term COVID-19 than males.”
The peer-reviewed study, led by the University of Texas Health Science Center, observed 12,276 people and found females had a "significantly higher" risk of long-term COVID-19 than males.
“Long COVID is not just a growing medical problem” | Radboud University
The impacts of long COVID across OECD countries
Long COVID alone costs 7M life-years (QALYs) and on the order of a trillion dollars a year in the OECD.
AI Tool Reveals Long COVID May Affect 23% of People - Neuroscience News
Most People With Long COVID Do Not Recover in Second Year of Illness
“The majority of working-age patients with postacute sequelae of COVID-19/post-COVID-19 syndrome (PCS) do not recover in the second year of their illness, according to a study published online Jan. 23 in PLOS Medicine.”
The majority of working-age patients with postacute sequelae of COVID-19/post-COVID-19 syndrome (PCS) do not recover in the second year of their illness, according to a study published online Jan. 23 in PLOS Medicine.
Women Face Higher Risk for Long COVID
“Women have a higher risk for developing long COVID than men, according to a study published online Jan. 22 in JAMA Network Open.”
Women have a higher risk for developing long COVID than men, according to a study published online Jan. 22 in JAMA Network Open.
The Survivorship Bias That’s Killing Us: Long COVID and the Myth of “Moving On”
“The Survivorship Bias That’s Killing Us: Long COVID and the Myth of “Moving On”
It’s easy to believe everything is fine when you only see the survivors. The people who didn’t die, who seem to be “back to normal,” are the faces we focus on. But what about the ones you don’t see? The coworker who hasn’t returned to the office. The friend who never seems to make plans anymore. The parent who used to juggle it all but now struggles to get through the day. These are the millions suffering from Long COVID.”
Study Finds Cases of ME/CFS Increase Following SARS-CoV-2 Infection
“Study Finds Cases of ME/CFS Increase Following SARS-CoV-2 Infection 4.5% of people who had COVID-19 met diagnostic criteria for myalgic encephalomyelitis/chronic fatigue syndrome.”
‘This sucks’: Long COVID has taken thousands out of N.H. workforce, study says - The Boston Globe
Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards
“Dismissed and Disbelieved, Some Long COVID Patients Are Pushed Into Psychiatric Wards”
Exeter firm excited over long Covid test breakthrough
Long COVID patients frustrated by lack of new treatments
Women at ‘significantly higher risk’ of developing long COVID, study finds. What to know
1 in 22 COVID survivors develop debilitating chronic syndrome
Into Darkness
“Long COVID patients have been in hell since 2020. Now the distant light at the end of the tunnel - billions of dollars in future clinical studies - is being extinguished too.”
Long COVID patients have been in hell since 2020. Now the distant light at the end of the tunnel - billions of dollars in future clinical studies - is being extinguished too.
The BLOOD POOLING of Long COVID
Chronic Fatigue Syndrome Has Surged Since The Pandemic, Study Reveals
The general population still seems to think “LongCovid” & COVID complications are these hazy, undefined, psychological problems which can be magically fixed by SSRIs & talk therapy, instead of like 10-15 different serious diagnoses you will be living with for the rest of your…
“The general population still seems to think “LongCovid” & COVID complications are these hazy, undefined, psychological problems which can be magically fixed by SSRIs & talk therapy, instead of like 10-15 different serious diagnoses you will be living with for the rest of your life, that requires routinely seeing a ton of different specialists. You won’t be working long hours to move up in the world—or working at all—because surviving all your chronic illnesses is now your unpaid FULL-TIME JOB. The chronic illnesses you acquire as a result of this particular novel pathogen are special though, because no one believes the cause (including your doctors) & all of society accuses you of malingering. It’s quite expensive & difficult to survive in these circumstances, thus many people are not.”
Exploring the long-term neurological consequences of COVID-19
“Long COVID is causing disproportionate morbidity and disability in younger adults”
Vulnerable Americans live in the shadow of COVID-19 as most move on
“Tossing aside the threat of long COVID is hard to imagine for Yale immunologist Akiko Iwasaki..scientists still don’t know how pieces of the virus can stick around in the blood”
Study reveals key risk factors for long COVID
“Newsday: 'Stony Brook study: Long COVID risk increases with multiple infections'
"Long COVID is now the threat," said Dr. Reynold A. Panettiere, Jr., vice chancellor at the Rutgers Institute for Translational Medicine and Science”
‘The pandemic isn’t over’: my year of long Covid – video
“Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and involved parent he wants to be to his two children. The Guardian has spent a year with Darren and his family to document his journey as he tries to recover from long Covid and come to terms with his new reality”
Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and involved parent he wants to be to his two children. The Guardian has spent a year with Darren and his family to document his journey as he tries to recover from long Covid and come to terms with his new reality
Thanks to a houseguest that overstayed its visit (COVID), I was placed in a medically induced coma due to lung failure and put on the most extreme form of life support, called ECMO, in March 2020.