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Nearly 200,000 Texans are waiting for care through Medicaid programs for people with...

Advocating for Better Treatment of Autistic Individuals

Photo by Vanessa Bucceri on Unsplash As more and more information becomes available about the dangers of ABA, behavior analysts and ABA providers are beginning to abandon their jobs for less harmfu…

Is ABA abusive? One of the most hotly-contended points of division between the adult autistic community and the neurotypical parents of autistic children: explained.

In 1961, UCLA psychologist Dr. Ole Ivar Lovaas invented Applied Behavior Analysis (ABA) to “fix” autistic children. Using “aversive stimuli” ranging from withholding affecti…

Carol Millman, a professional dog trainer, compares ABA to dog training in this powerful expose.

This article discusses the prevalence of ASD with specific regard to the most ubiquitous current treatment, Applied Behavior Analysis (ABA). A discussion of some of the issues with the underlying t...

In this comprehensive systematic review and meta-analysis of group design studies of nonpharmacological early interventions designed for young children with autism spectrum disorder (ASD), we report summary effects across 7 early intervention types (behavioral, developmental, naturalistic developmental behavioral intervention [NDBI], TEACCH, sensory-based, animal-assisted, and technology-based), and 15 outcome categories indexing core and related ASD symptoms. A total of 1,615 effect sizes were gathered from 130 independent participant samples. A total of 6,240 participants, who ranged in age from 0–8 years, are represented across the studies. We synthesized effects within intervention and outcome type using a robust variance estimation approach to account for the nesting of effect sizes within studies. We also tracked study quality indicators, and report an additional set of summary effect sizes that restrict included studies to those meeting prespecified quality indicators. Finally, we conducted moderator analyses to evaluate whether summary effects across intervention types were larger for proximal as compared with distal effects, and for context-bound as compared to generalized effects. We found that when study quality indicators were not taken into account, significant positive effects were found for behavioral, developmental, and NDBI intervention types. When effect size estimation was limited to studies with randomized controlled trial (RCT) designs, evidence of positive summary effects existed only for developmental and NDBI intervention types. This was also the case when outcomes measured by parent report were excluded. Finally, when effect estimation was limited to RCT designs and to outcomes for which there was no risk of detection bias, no intervention types showed significant effects on any outcome. (PsycInfo Database Record (c) 2020 APA, all rights reserved)

When a common practice isn’t necessary or useful even under presumably optimal conditions, it’s time to question whether that practice makes sense at all. For example, if teachers don’t need to give grades even in high school (and if eliminating grades clearly benefits their students), how can we justify grading younger children? If research shows there’s little or no benefit to assigning homework even in math, which is the discipline that proponents assume makes the clearest case for its value, why would we keep assigning it in other subjects? And if it turns out that, contrary to widespread assumptions, behavior modification techniques aren’t supported by solid data even when used with autistic kids, why would we persist in manipulating anyone with positive reinforcement? A rigorous new meta-analysis utterly debunks the claim that applied behavior analysis (ABA) therapy is the only intervention for children with autism that’s “evidence-based.” In fact, it raises serious questions about whether ABA merits that description at all. Before exploring the new report, let’s take a minute to consider what we know about rewards and positive reinforcement more generally. In 2018, I reviewed two decades of recent research for the 25th-anniversary edition of my book Punished by Rewards. These studies strongly confirm the original findings: Carrots, like sticks, are not merely ineffective over the long haul but often actively counterproductive — at work, at school, and at home — and these negative effects are found across ages, genders, and cultural settings. As a rule, the more you reward people for doing something, the more they tend to lose interest in whatever they had to do to get the reward. And they often end up being less successful at a task they’re completing than are people who weren’t offered any reward for doing it. (Even more damaging, according to the research, is an arrangement where people are offered a reward for doing something well.) In the face of such evidence, which has been accumulating for about half a century, the last refuge of behaviorists has been to claim that rewards must be used on people with special needs and challenges. Heavy-handed controlling tactics, and rewards in particular, are most pervasively applied to children who carry a label that sets them apart. They are often subjected to a relentless regimen of Skinnerian manipulation, complete with elaborate charts, point systems, and reinforcement schedules. Even teachers and clinicians who would hesitate to treat other children that way assume it’s justified, or even necessary, to do so with, well, you know, those kids. But that claim has always been hard to defend based on research. Even older studies showed, for example, that (a) teachers act in a more controlling way with children who are thought to have a learning disability than they do with other students, (b) moral objections aside, the use of control almost always backfires, (c) children identified as learning disabled are just as intrinsically motivated to learn as their peers are in the early grades, but (d) they soon come to be “more dependent on external sources of evaluation” such as rewards and praise, “whereas regular students [feel more] capable of making decisions on their own.” (I’m quoting here from a study in the Journal of Clinical Child Psychology). Much the same is true of children whose diagnosis would now be ADHD.1 In fact, regardless of whether we’re talking about kids with emotional issues, problems with learning or attention, intellectual disabilities, or behavior challenges, offering rewards (including praise) for doing what the adult wants can sometimes buy temporary compliance, but rarely does the intended effect generalize to other situations. And not uncommonly it is actually worse than doing nothing. However, like economists with their axiomatic commitment to using incentives to change people’s behavior, “behavior analysts” have set up an unfalsifiable belief system: When behavioral manipulation fails, the blame is placed on the specific reinforcement protocol being used or on the adult who implemented it or on the child — never on behaviorism itself. The underpinnings of that ideology include: a focus only on observable behaviors that can be quantified, a reduction of wholes to parts, the assumption that everything people do can be explained as a quest for reinforcement, and the creation of methods for selectively reinforcing whichever behaviors are preferred by the person with the power. Behaviorists ignore, or actively dismiss, subjective experience — the perceptions, needs, values, and complex motives of the human beings who engage in behaviors. The late Herb Lovett used to say that there are only two problems with “special education” in America: It’s not special and it sure as hell isn’t education. The field continues to be marinated in behaviorist assumptions and practices despite the fact that numerous resources for teachers, therapists, and parents offer alternatives to behavior control.2  These alternatives are based on a commitment to care and to understand. By “care,” I mean that our relationship with the child is what matters most. He or she is not a passive object to be manipulated but a subject, a center of experience, a person with agency, with needs and rights. And by “understand,” I mean that we have an obligation to look beneath the behavior, in part by imaginatively trying to adopt that person’s point of view, attempting to understand the whys rather than just tabulating the frequency of the whats. As Norm Kunc and Emma Van der Klift urged us in their Credo for Support: “Be still and listen. What you define as inappropriate may be my attempt to communicate with you in the only way I can….[or] the only way I can exert some control over my life….Do not work on me. Work with me.” * But autism! Now we’re talking potentially about a much more serious set of challenges: a child who can’t communicate the way other children do and doesn’t seem to understand boundaries, who is exquisitely sensitive to (or, conversely, in constant need of) sensory stimulation, who may explode when there’s even a slight deviation from rigid routines, who engages in repetitive behaviors and might even be at risk of injuring himself or those around him. All of this is unsettling at best, and often downright frightening, for a neurotypical adult. Enter ABA: an intensive training regimen consisting of an elaborate system of rewards to make children comply with external directives, to memorize and engage in very specific behaviors. An expert promises to train the child to make eye contact or point at an object on command, to stop fluttering his hands or rocking — in short, to make him act like a normalkid. ABA is the accepted, expected, even mandated system for dealing with autistic children. One California teacher, new to special education, observed that “almost all school programs for students with severe autism are based on ABA. Alternative programs are difficult to find and parents may not know of their existence.” So she agreed to learn how to do it — and was quickly appalled. Her account of how ABA silenced the kids’ voices and violated their dignity, how she kept feeling she was “torturing” them, illustrates what it means to bring fresh eyes to a situation that everyone around you has come to accept and rationalize. But even more compelling is the testimony of young people who understand the reality of this approach better than anyone because they’ve been on the receiving end of it. It is nothing short of stunning to learn just how widely and intensely ABA is loathed by autistic adults who are able to describe their experience with it. Frankly, I’m embarrassed that, until about a year ago, I was completely unaware of all the websites, articles, scholarly essays, blog posts, Facebook pages, and Twitter groups featuring the voices of autistic men and women, all overwhelmingly critical of ABA and eloquent in describing the trauma that is its primary legacy. How is it possible that their voices have not transformed the entire discussion? Suppose you participated in implementing a widely used strategy for dealing with homelessness, only to learn that the most outspoken critics of that intervention were homeless people. Would that not stop you in your tracks? What would it say about you if it didn’t? And yet the consistent, emphatic objections of autistic people don’t seem to trouble ABA practitioners at all. Indeed, one critical analysis of ethics in this field notes that “autistics have been excluded from all committees, panels, boards, etc., charged with developing, directing, and assessing ABA research and treatment programs.” So why are autistic people so opposed? For many, the underlying assumption that they have a disease that needs to be cured is misconceived and offensive. Resistance to this premise led to the founding of the Autistic Self-Advocacy Network and has been described in such mainstream periodicals as Salon, the Atlantic, and the New York Times. From the last of those three articles: “Autism has traditionally been seen as a shell from which a normal child might one day emerge. But some advocates contend that autism is an integral part of their identities, much more like a skin than a shell, and not one they care to shed. The effort to cure autism, they say, is not like curing cancer, but like the efforts of a previous age to cure left-handedness.” Or like curing homosexuality: In the autism community, ABA is often compared to gay conversion therapy.3 Many argue that its goal is to force these children to stop being who they are. While this objection presumably would apply to any method used to “cure” people of autism, ABA is uniquely repugnant. Here’s why: * It’s dehumanizing and infantilizing. Should we really be surprised that people chafe at spending hour after hour being promised the equivalent of a doggie biscuit for jumping through hoops

This review found limited evidence that early intensive applied behaviour analysis-based interventions improve cognitive ability and adaptive behaviour in autistic children, but the long-term impact of the interventions remains unknown.

Training by Repetition Actually Prevents Learning for Those With Autism

Autism's mainstream, behavioural treatment has recently faced allegations from neurodiversity activists, who claim that behaviourism is methodological…

The current study explored whether people who camouflage autistic traits are more likely to experience thwarted belongingness and suicidality, as predicted by the Interpersonal Psychological Theory of Suicide (IPTS). 160 undergraduate students (86.9% female, 18-23 years) completed a cross-sectional …

“Building a Person”: Legal and Clinical Personhood for Autistic and Trans Children in Ontario - Volume 35 Issue 2

It was a sad period in our past when Indigenous children lost their names, languages and connection to their heritage.

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It is from being disabled that I heave learned about the dangerous and privileged “myth of independence” and embraced the power of interdependence. The myth of independence being of cou…

This was the opening keynote speech at the 2018 Disability Intersectionality Summit, in Cambridge, Massachusetts on Oct 13, 2018. The official video recording of this keynote can be found he…

Letter from the editors – When we say we want disability justice, we don’t just mean wheelchair-accessible buildings and sign-language interpretation. We mean an end to the systems and structures that disable and debilitate us and a future where there is enough care, community, and support for everyone to thrive.

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Empathy is difficult. People tend to forget how hard it is, because most of us spend a lot of time around people much like ourselves; or if…

The double empathy theory challenges the idea that social difficulties are specific to autism and suggests that problems arise from a mismatch in perspective between autistic and non-autistic people.

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PDF | This paper examines the presently underdeveloped potential for school grounds to form part of learning environments, especially in the pandemic... | Find, read and cite all the research you need on ResearchGate