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Open Society
Safe Space - Reinventing Organizations Wiki
Listening to purpose - Reinventing Organizations Wiki
The ‘double empathy problem’: Ten years on - Damian Milton, Emine Gurbuz, Betriz Lopez, 2022
In simple terms, the ‘double empathy problem’ refers to a breakdown in mutual understanding (that can happen between any two people) and hence a problem for both parties to contend with, yet more likely to occur when people of very differing dispositions attempt to interact. Within the context of exchanges between autistic and non-autistic people however, the locus of the problem has traditionally been seen to reside in the brain of the autistic person. This results in autism being primarily framed in terms of a social communication disorder, rather than interaction between autistic and non-autistic people as a primarily mutual and interpersonal issue.It has been 10 years since the ‘double empathy problem’ as a term was first described within the pages of an academic journal (Milton, 2012). Although, importantly, the conceptualisation of the issue has since its inception been influenced by and framed within a broader history of academic theorising (particularly from the disciplines of Sociology and Philosophy). Yet, this coining of the term helped express an issue that had long been discussed within autistic community spaces. The initial conceptualising of the double empathy problem was critical of theory of mind accounts of autism and suggested that the success of an interaction partly depended on two people sharing similar experiences of ways of being in the world. This is not to say that autistic people will automatically be able to connect and feel empathy with other autistic people they meet any more than two random non-autistic people would; however, there is greater potential for such, at least in how being autistic (or not) shapes experiences of the social world. An obvious example would be how differing sensory perceptions would impact communicating with others and shared understanding.
View of The Rise and Fall of the Plastic Straw | Catalyst: Feminism, Theory, Technoscience
The Rise and Fall of the Plastic Straw | Catalyst: Feminism, Theory, Technoscience
This personal essay describes the recent bans on plastic straws in the United States and the subsequent response by disabled people on social media to ableist narratives centered on straws-as-harm. The cripping of plastic straws, an access tool for many people, is one example of disabled people creating and repairing what Nancy Mairs calls a ‘habitable world.’ The author shares her own experiences with the Great Straw Debate of 2018 and the collective power of online communities against this effort.
Race To Dinner
Mission - Holistic Think Thank
Human Centered Interdisciplinary Subject - Holistic Think Thank
The recording was taken during the Holistic Think Tank Grant Summary meeting with Human Restoration Project in September 2022.
Willing to join our team, receive a grant or present your papers on our website? Please contact us at: contact@holisticthinktank.com
People management and bullying
It is interesting that the mainstream media occasionally does get concerned about manipulation techniques used in people management, and is much less concerned about the common use of bullying and…
Our education system has a big gaping hole when it comes to teaching people how to coordinate complex activities without resorting to so-called leadership and management skills, which are effectively the same skills that other primates (baboons, chimpanzees, etc.) use to establish and maintain dominance hierarchies. Humans would not have become so successful on this planet just by focusing on these skills.
Humans became more successful than other primates by recognising the limitations and social learning disabilities induced by maintaining dominance hierarchies. It is no surprise that for hundreds of thousands of years humans lived in small and highly egalitarian groups. That’s what has made them more successful than other primates. As I outline in this article, things started to go downhill with humans with the invention of “civilisation” around 10,000 years ago.
Repairing the human cultural immune system
Do you want real change? Becoming conscious of human cognitive limits and recognising that these limits are just as real, immutable, and relevant for our survival as the laws of physics is essentia…
A Knife Wound to the Gut: VOR and People With Disabilities
…. when I got my supports, this is who I am. You know what? Instead of asking that stupid question, ‘What happened to people with behaviour?’ – okay, what kind of supports do they need? What …
I'm The Parent of a "Severe" Autistic Teen. I Oppose the National Council on Severe Autism. — THINKING PERSON'S GUIDE TO AUTISM
Shannon Des Roches Rosa squidalicious.com Leo making me make fart noises, because that is never not funny to him. [image: Photo of the author’s teen son squeezing her cheeks so she will make a raspberry sound with her mouth. Both are wearing hats, outdoors.] Last week my son Leo and I had a pleasant arm-in-arm walk* around a fancy shopping center while his sibling was at an appointment. We strolled past the coin collector’s shop and the jodhpurs boutique, then popped into the housewares store—just in case they had any unintentionally awesome fidget toys (which, being gadget central, of course they did). Finding delight in utilitarian objects is part of what being autistic means for my son. Another part is being a traveling one-person party. I go with his flow, as long as he’s not being disruptive. So as we wound our way past the store’s racks of remarkably specialized cooking…
Good Autistic Advocacy Organizations vs. Bad Autism “Charities”
Image description: Examples of good autism advocacy organizations at the top, such as the Autistic Self Advocacy Network, Autistic Inclusive Meets, the Autistic Women and Nonbinary Network, and Aut…
I want my cyborg life | danah boyd | apophenia
It's Impossible to Keep Laptops Out of the Classroom
So there's no sense arguing against education technology.
I use the word “cyborg” deliberately. Alice Wong, who founded the Disability Visibility Project, travels around the world (even to White House parties) via remote-controlled robot. “We’re all cyborgs,” she has frequently told me, pointing to the many ways in which people of all different types of abilities intersect with technology. When people try to limit access to tech, she argues, they’re really cutting off part of themselves.Danah Boyd, a technologist at Microsoft, wrote in 2009 about missing her “cyborg life” whenever she’s cut off from the online world, including during classroom-like occasions. “I can’t pay attention in a lecture without looking up relevant content,” she wrote. “And, in my world, every meeting and talk is enhanced through a backchannel of communication.” In her most recent book, It’s Complicated: The Social Lives of Networked Teens, Boyd explored how much more intensely younger generations experience being cut off from information flow. The “networked world,” she wrote, is here to stay. It’s up to teachers, then, to build networks of learning, solidarity, mutual respect, and even trust.
Common Cyborg
‘I’m nervous at night when I take off my leg. I wait until the last moment before sleep to un-tech because I am a woman who lives alone.’ Jillian Weise on the concerns of a cyborg.
Disabled people who use tech to live are cyborgs. Our lives are not metaphors.
‘They are trying to give me tech I don’t want,’ a cyborg says.
‘Oh fuck. I had hoped for better news,’ I reply.
I call them tryborgs. They have tried to be cyborgs, but they are stuck on the attempt, like a record skipping, forever trying to borg, and forever consigned to their regular un-tech bodies. They are fake cyborgs. They can be recognized because, while they preach cyborg nature, they do not actually depend on machines to breathe, stay alive, talk, walk, hear or hold a magazine. They are terribly clumsy in their understanding of cyborgs because they lack experiential knowledge. And yet the tryborgs – for reasons that I do not understand – are protective of cyborg identity. I often find my bio re-written by a tryborg: ‘She claims to be a cyborg’ or ‘she calls herself a cyborg’. Imagine if they said this about my other identities: ‘She claims to be a woman. She calls herself white.’
It can be a bit intimidating to claim cyborg identity. I feel like it is an impossible task to define myself against the cyborg wreckage of the last century while placing myself in the present and projecting forward. I worry that the cyborg is sometimes just a sexy way to say, ‘Please care about the disabled,’ and why should I have to say that? I worry that the cyborg is too much an institution, an illusion of the nondisabled, the superhero in the movie, the mixed martial artist, the bots who either make life easy or ruin everything. Yet I recognize the disabled who double as cyborgs. On Instagram, we are @aannggeellll, a white woman with a bionic arm and a plate of cupcakes.
They like us best with bionic arms and legs. They like us deaf with hearing aids, though they prefer cochlear implants. It would be an affront to ask the hearing to learn sign language. Instead they wish for us to lose our language, abandon our culture and consider ourselves cured. They like exoskeletons, which none of us use. They would never consider cyborg those of us with pacemakers or on dialysis, those of us kept alive by machines or made ambulatory by wheelchairs, those of us on biologics or anti-depressants. They want us shiny and metallic and in their image.
Going Cyborg (Published 2010)
It was harder than usual to adjust to this new leg.
I’m a cyborg. A few weeks ago, someone said, “I don’t think that makes you a cyborg since it’s the leg that plugs into the wall.”“It’s not the leg,” I said. “It’s my leg.”
77NEW
Haraway, Donna
Improving Disability Representation in Star Wars | One Scene for Joy
The Mods' reception in The Book of Boba Fett seemed to be controversial. Many claiming The Mods don't fit in Star Wars. So join us taking a deeper look at The Mods and groups in real life that choose to stand out and what The Mods mean for Disability Representation in Star Wars!
🔥 Check out One Scene for Joy! 🔥
One Scene for Joy Playlist: https://youtube.com/playlist?list=PLX5xjsN7jy--1uex8aSZTt9C2NcoeD23M
Thank you @The Costume Codex https://www.youtube.com/c/TheCostumeCodex
✊ Thanks To ✊
Big thanks to everyone who contributed their voices to the video!
Kevin of PixelLitPod.com
@Darkfry
@Emileigggggh
Nina 💜
@Ponderful
For script and video checking:
@Actual Fandom
Nina
🎥 Videos to Watch if You Liked This 🎥
What Hawkeye Gets Right | Disability Representation in Media https://youtu.be/kdWyGYqgmmU
Why We Fear Being Different | A Loki Video Essay https://youtu.be/Q3_gYA5Jm_8
Why Does Star Wars Feel Small? (& That's Good) https://youtu.be/jnFL2hIwFv4
💜 Support Us 💜
Support on Patreon ► https://www.patreon.com/QuestingRefuge
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0:00 Intro
3:20 What is One Scene for Joy?
3:50 Who would stand out on purpose?
8:29 How The Mods represent disability
15:54 On Being Radically Visible
📚 Sources & Related Links📚
The Dawn of the ‘Tryborg’ https://www.nytimes.com/2016/11/30/opinion/the-dawn-of-the-tryborg.html
The Pandemic Made Me Realize My Brain Is Already Cyborg https://www.wired.com/story/cyborg-brain-mind-pandemic-philosophy/
Disability Visibility Project https://disabilityvisibilityproject.com/
Disability Visibility Ep. 66 Cyborgs https://disabilityvisibilityproject.com/2019/12/18/ep-66-cyborgs/
Disability Visibility anthology https://disabilityvisibilityproject.com/book/dv/
Rebirth Garments https://rebirthgarments.com/
Viktoria Modesta https://thealternativelimbproject.com/in-depth/viktoria/
Congo's sapeurs pass their style on to a new generationhttps://www.bbc.com/news/world-africa-54323473
Black Dandyism: When dressing got political https://www.cnn.com/style/article/black-dandy-art-exhibition/index.html
Black Dandyism Is Back, and It’s Both Oppositional Fashion and Therapy at Once https://matadornetwork.com/life/black-dandyism-back-oppositional-fashion-therapy/
The Politics of Black Dandyism https://www.port-magazine.com/fashion/the-politics-of-black-dandyism/
The Lives of Samuel Fosso https://aperture.org/editorial/lives-samuel-fosso/
Soweto Style https://slate.com/news-and-politics/2014/07/sowetos-skhothanes-inside-the-south-african-townships-ostentatious-youth-subculture.html
#StarWars #DisabilityPride #Disability
Channel Art by @enbodie
https://twitter.com/enbodie
https://www.twitch.tv/enbodie
My Brain Is Already Cyborg
We disabled people have been cyborgs since the dawn of time—but it took the pandemic for me to realize that my mind is one, too.
Opinion | The Dawn of the ‘Tryborg’ (Published 2016)
My computerized leg makes me a real-life cyborg. So what’s with all the pretenders?
Most cyborgs are disabled people who interface with technology. We depend on a computer for some major bodily function. The tryborg — a word I invented — is a nondisabled person who has no fundamental interface. The tryborg is a counterfeit cyborg. The tryborg tries to integrate with technology through the latest product or innovation. Tryborgs were the first to wear Google Glass. Today they wait in line for Snapchat Spectacles. The tryborg adopts the pose of a cyborg. But no matter how hard they try, the tryborg remains a pretender.
Tryborgs can only imagine what life is like for us.
If you are thinking, No, no, no, cyborgs do not exist, they are theoretical creatures, then you are likely a tryborg.Tryborgs rely on the nonexistence of actual cyborgs for their bread and butter. If cyborgs exist, how will the tryborg remain relevant? Wouldn’t we just ask the cyborg for her opinion? The opinions of cyborgs are conspicuously absent from the expert panels, the tech leadership conferences and the advisory boards. The erasure is not news to us. We have been deleted for centuries, and in the movies, you will often see us go on a long, fruitful journey, only to delete ourselves in the end.But anyone with a hard drive can tell you: Even when you delete something, it is not really gone. So it is with us cyborgs. We remain in the periphery, un-scrubbed and un-snuffed out.
Autism 206 raymaker slides
#19 Regaining Agency
2 simple steps.
Neurodivergent Kids and Homework Struggles
Helpful strategies for supporting kids with ADHD, autism, and learning differences.
parents - Thriving Students Collective
Short on time but your kids’ needs are high?Get the support you need to make a real difference for you and your child.Shop our Resources learn to manage meltdowns and shutdowns Being a parent means you’re juggling a lot. Pile on meltdowns, shutdowns, and anxiety your child may have about school, and it can feel […]
Designing Possibility in Schools
The default culture within most schools today is more transactional than transformational and dehumanizing in that students and teachers do not have the space where they can be successful without sacrificing some part of their identities.
“Queremos un mundo donde quepan muchos mundos // We want a world where many worlds fit.” – Zapatista of Chiapas
Perhaps this is because we have embraced a culture of belonging that comes from compliance and conformity rather than divergence and diversity. Both lead to a sense of belonging but the difference is the cost. This is the paradox of belonging. Perhaps this is the challenge to address in schools. Perhaps this is a challenge best addressed at the intersection of imagination and design for the future of schools.
“Any system produces what it was designed to produce.” – The National Equity Project
Liberatory design is an emergent process that adds two notable modes to design thinking: notice and reflect. As components of consciousness, intentional work in which educators notice and reflect will result in schools that are more fully human because the faculty is more self-aware in its instructional practices and curriculum design. This suggests the real value of liberatory design, its ability to counter the tendencies in modern life that underlie systemic injustice.
Short report: Preferences for identity-first versus person-first language in a US sample of autism stakeholders - Amanda Taboas, Karla Doepke, Corinne Zimmerman, 2022
Although person-first language is commonly used in many professional settings, this practice has received criticism from self-advocates and scholars who believe...
Guides, Statements & Policy Papers
Following are some of our statements, guides & policy papers. (To request other guides and Powerpoints please Contact us.) Land Acknowledgement (for Toronto events) Land acknowledgment Guides f…