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OPINION | The 'crip tax': Everything has a cost, but for people with disabilities that's quite literally the case | CBC News
OPINION | The 'crip tax': Everything has a cost, but for people with disabilities that's quite literally the case | CBC News
Canadians with disabilities live on below-average income that barely meets the poverty line and pay an automatic ‘crip tax’ according to advocate, actor and writer John Loeppky, who lives in Regina. Having a disability has built-in added costs, including higher prices for food, transportation, medical expenses and barriers to housing.
Crip tax is a linguistic substitute for the hidden costs of living with a disability. For those of us who have reclaimed 'crip,' it's a tongue-in-cheek rallying cry; it's a stage whisper; and it can be in an open letter. Whenever it's used, crip tax is a term that demands attention.
Being disabled is far more expensive than people think, even when it comes to the most basic of needs.
·cbc.ca·
OPINION | The 'crip tax': Everything has a cost, but for people with disabilities that's quite literally the case | CBC News
More resources
More resources
Free reading lists, information about organisations, and information for families.
·ed.ac.uk·
More resources
The New Kibbutz
The New Kibbutz
Kishorit, a self-described neurodiverse kibbutz, is redefining Israeli communal living at a time when these communities are on the decline
·tabletmag.com·
The New Kibbutz
On Hans Asperger, the Nazis, and Autism: A Conversation Across Neurologies — THINKING PERSON'S GUIDE TO AUTISM
On Hans Asperger, the Nazis, and Autism: A Conversation Across Neurologies — THINKING PERSON'S GUIDE TO AUTISM
by Maxfield Sparrow and Steve Silberman How complicit was Hans Asperger with the murderous eugenic policies of the Third Reich in his role as the head of the Children’s Clinic at University of Vienna in the 1930s and 1940s? This painful question, which has vexed autism history for decades, has been reopened by the simultaneous publication of Edith Sheffer’s book “Asperger’s Children” and Herwig Czech’s paper in The Journal of Molecular Autism, “Hans Asperger, National Socialism, and ‘race hygiene’ in Nazi-era Vienna.” By unearthing new information from the municipal archives in Vienna that was mistakenly believed to be lost, Sheffer and Czech make the case that Asperger was more culpable than historians previously believed. They portray him as a calculating, ambitious young physician who never joined the Nazi party but was “prematurely promoted” over the heads of his Jewish colleagues as they were purged from the university in the increasingly…
·thinkingautismguide.com·
On Hans Asperger, the Nazis, and Autism: A Conversation Across Neurologies — THINKING PERSON'S GUIDE TO AUTISM
Face the truth: what you REALLY mean when you say "low-functioning"
Face the truth: what you REALLY mean when you say "low-functioning"
I'm so freaking tired of people throwing around functioning labels. "High" functioning autism. "Low" functioning autism. "Moderately," "mildly," or "severely" affected by autism. Aside from the fact that these labels are arbitrary, divisive,
·web.archive.org·
Face the truth: what you REALLY mean when you say "low-functioning"
More Problems with Functioning Labels
More Problems with Functioning Labels
The problems with functioning labels like "high-functioning" and "low-functioning" when referring to human beings.
·ollibean.com·
More Problems with Functioning Labels
Conclusion:
Conclusion:
okay but if someone doesn't experience homophobia or transphobia then they're not lgbt it's as simple as that.... the lgbt community doesn't exist for the purpose of being "inclusive" it literally is...
·vaspider.tumblr.com·
Conclusion:
Neurodiversity, Advocacy, Anti-Therapy
Neurodiversity, Advocacy, Anti-Therapy
This chapter provides an overview of the origins and theoretical stance of the neurodiversity movement, and then explores the implications in terms of what, if any, treatments for autism are appropriate. We outline some of the key arguments and critiques made by...
·link.springer.com·
Neurodiversity, Advocacy, Anti-Therapy
When Private Equity Takes Over a Nursing Home
When Private Equity Takes Over a Nursing Home
After an investment firm bought St. Joseph’s Home for the Aged, in Richmond, Virginia, the company reduced staff, removed amenities, and set the stage for a deadly outbreak of COVID-19.
·newyorker.com·
When Private Equity Takes Over a Nursing Home
Fpsyg 13 876990
Fpsyg 13 876990
·fjfsdata01prod.blob.core.windows.net·
Fpsyg 13 876990
From ivory tower to inclusion: Stakeholders’ experiences of community engagement in Australian autism research
From ivory tower to inclusion: Stakeholders’ experiences of community engagement in Australian autism research
Autistic people, and other community stakeholders, are gaining increasing recognition as valuable contributors to autism research, resulting in a growing corpus of participatory autism research. Yet, we know little about the ways in which stakeholders practice and experience community engagement in autism research. In this study, we interviewed 20 stakeholders (academics, autistic people, family members/careers, research students, and service providers) regarding their experiences of community engagement in Australian autism research. Through reflexive thematic analysis of interview data, we generated four themes. First, our participants perceived academia as an “ivory tower,” disconnected from community members’ lives and priorities. Second, our participants identified that different stakeholders tended to hold different roles within their research projects: academics typically retained power and control, while community members’ roles tended toward tokenism. Third, our participants spoke of the need to “bridge the gap” between academia and the community, highlighting communication, accessibility, and planning as key to conducting effective participatory research. Lastly, participants emphasized the changing nature of autism research, describing participatory research as “the way of the future.” Our findings reflect both the progress achieved to date, and the challenges that lie ahead, as the field advances toward genuine co-production of autism research.
Participants, including researchers, described the field of autism research as being largely out-of-touch with the realities of autistic people’s lives. They spoke of autism research as failing to address the autistic community’s priorities, instead being “more focused on things like genetics, or parent stress, that are quite stigmatising or… not vital to their day-to-day functioning” (06-RSp), or “addressing stuff that just does not matter. It’s just irrelevant. It just does not matter” (04-R). Participants felt that autism research often failed to improve the lives of autistic participants, who were “just… contributing their information, contributing their experiences to studies that… would never help them, in the end” (05-StF).
The findings presented here paint a picture of a field in flux, facing a shift from the “normal science” (Pellicano and den Houting, 2022) of the ivory tower to a more inclusive, real-world paradigm with community members valued as key agents in knowledge production.
·frontiersin.org·
From ivory tower to inclusion: Stakeholders’ experiences of community engagement in Australian autism research
Behaviorism Won
Behaviorism Won
I have volunteered to be a guest speaker in classes this term. Yesterday, I talked to the students in Roxana Marachi's educational psychology class at San Jose State.
Papert was one of the founders of constructionism, which builds on Piaget's theories of constructivism — that is, learning occurs through the reconstruction of knowledge rather than a transmission of knowledge. In constructionism, learning is most effective when the learner constructs something meaningful.
I have often argued to students, only in part to be perverse, that one cannot understand the history of education in the United States during the twentieth century unless one realizes that Edward L. Thorndike won and John Dewey lost.
Thorndike won, and Dewey lost. You can't understand the history of education unless you realize this. I don't think you can understand the history of education technology without realizing this either. And I'd go one step further: you cannot understand the history of education technology in the United States during the twentieth century – and on into the twenty-first – unless you realize that Seymour Papert lost and B. F. Skinner won.
But behaviorism did not go away. And I'd argue that didn't go away because of the technologies of behavior that Skinner (and his students) promulgated.
Edward L. Thorndike was an educational psychology professor at Columbia University who developed his theory of learning based on his research on animal behavior – perhaps you've heard of his idea of the "learning curve," the time it took for animals to escape his puzzle box after multiple tries. And John Dewey was a philosopher whose work at the University of Chicago Lab School was deeply connected with that of other social reformers in Chicago – Jane Addams and Hull House, for example. Dewey was committed to educational inquiry as part of democratic practices of community; Thorndike's work, on the other hand, happened largely in the lab but helped to stimulate the growing science and business of surveying and measuring and testing students in the early twentieth century. You can think of the victory that Condliffe Lagemann speaks of, in part, as the triumph of multiple choice testing over project-based inquiry.
Skinner won; Papert lost. Thorndike won; Dewey lost. Behaviorism won.
Folks will point to things like maker-spaces to argue that progressive education is thriving. But I maintain, even in the face of all the learn-to-code brouhaha, that multiple choice tests have triumphed over democratically-oriented inquiry. Indeed, when we hear technologists champion "personalized learning," it's far more likely that what they envision draws on Skinner's ideas, not Dewey's.
B. J. Fogg and his Persuasive Technology Lab at Stanford is often touted by those in Silicon Valley as one of the "innovators" in this "new" practice of building "hooks" and "nudges" into technology. These folks like to point to what's been dubbed colloquially "The Facebook Class" – a class Fogg taught in which students like Kevin Systrom and Mike Krieger, the founders of Instagram, and Nir Eyal, the author of Hooked, "studied and developed the techniques to make our apps and gadgets addictive," as Wired put it in a recent article talking about how some tech executives now suddenly realize that this might be problematic. (It's worth teasing out a little – but probably not in this talk, since I've rambled on so long already – the difference, if any, between "persuasion" and "operant conditioning" and how they imagine to leave space for freedom and dignity. Rhetorically and practically.)
If we look more broadly – and Skinner surely did – these sorts of technologies of behavior don't simply work to train and condition individuals; many technologies of behavior are part of a broader attempt to reshape society. "For your own good," the engineers try to reassure us. "For the good of the global community," as Zuckerberg would say. "For the sake of the children."
·hackeducation.com·
Behaviorism Won
Pigeons, Operant Conditioning, and Social Control
Pigeons, Operant Conditioning, and Social Control
This is the transcript of the talk I gave at the Tech4Good event I'm at this weekend in Albuquerque, New Mexico. The complete slide deck is here.
·hackeducation.com·
Pigeons, Operant Conditioning, and Social Control
You Can Rely on Drugs Without Being an Addict
You Can Rely on Drugs Without Being an Addict
It may seem like a trivial or academic distinction, but addiction is not dependence, and dependence is not necessarily a problem.
·vice.com·
You Can Rely on Drugs Without Being an Addict
My Disability Is Dynamic - No End In Sight
My Disability Is Dynamic - No End In Sight
This piece was originally published on Medium on December 8, 2019. The relationship between chronic illness and disability can be a complicated one. Not everyone who is disabled is chronically ill, and vice versa. And when I talk to people with chronic illness, lots and lots of people tell me that they aren’t sure if they’re … My Disability Is Dynamic Listen / Read Transcript »
The relationship between chronic illness and disability can be a complicated one. Not everyone who is disabled is chronically ill, and vice versa. And when I talk to people with chronic illness, lots and lots of people tell me that they aren’t sure if they’re allowed to call themselves disabled. I’ve interviewed more than 60 people about their experiences with chronic illness and I hear different versions of this same idea over and over again: “I’m not sure if I’m disabled enough. Some days I can exercise and go to work and have a drink with friends without a problem, and some days I physically cannot drag my body out of bed.”
·noendinsight.co·
My Disability Is Dynamic - No End In Sight
What does #NEISVoid mean? - No End In Sight
What does #NEISVoid mean? - No End In Sight
It's a hashtag you can use to join asynchronous Twitter conversations about life with chronic illness, diagnosed or otherwise.
·noendinsight.co·
What does #NEISVoid mean? - No End In Sight
Narratives of Scale in the Anthropocene: Imagining Human Responsibility in an Age of Scalar Complexity
Narratives of Scale in the Anthropocene: Imagining Human Responsibility in an Age of Scalar Complexity
The Anthropocene concept draws attention to the various forms of entanglement of social, political, ecological, biological and geological processes at multiple spatial and temporal scales. The ensuing complexity and ambiguity create manifold challenges to widely established theories, methodologies, epistemologies and ontologies. The contributions to this volume engage with conceptual issues of scale in the Anthropocene with a focus on mediated representation and narrative. They are centered arou
·routledge.com·
Narratives of Scale in the Anthropocene: Imagining Human Responsibility in an Age of Scalar Complexity
About
About
Learn about the meaning of “pluralism” and read about Pluralism Project staff, students, and advisors. Discover more about our initiatives, mission, and history.
·pluralism.org·
About
The minority stress perspective
The minority stress perspective
This perspective adds significant insight into the critical application and evaluation of theory regarding the impact of homophobia and correlates of HIV risk among gay and bisexual men and other sexual minorities.
Minority stress is the relationship between minority and dominant values and resultant conflict with the social environment experienced by minority group members
The concept of minority stress stems from several social and psychological theoretical orientations and can be described as a relationship between minority and dominant values and resultant conflict with the social environment experienced by minority group members (Meyer, 1995; Mirowsky & Ross, 1989; Pearlin, 1989). Minority stress theory proposes that sexual minority health disparities can be explained in large part by stressors induced by a hostile, homophobic culture, which often results in a lifetime of harassment, maltreatment, discrimination and victimization (Marshal et al., 2008; Meyer, 2003) and may ultimately impact access to care.
Underlying the concept of minority stress are assumptions that stressors are unique (not experienced by nonstigmatized populations), chronic (related to social and cultural structures) and socially based (social processes, institutions and structures) (Meyer, 2003). While this theory has been applied to other populations, including women, immigrants, the impoverished and racial/ethnic minorities, there is still much room for additional investigation among sexual minority populations, as they do not have as rich a history in sociological investigation (Meyer et al., 2008).
A strong correlation may be drawn between (a) minority stress theory, which underscores stress processes (experience of prejudice, expectations of rejection, internalized homophobia) and ameliorative coping processes (Meyer, 2003); and (b) a greater likelihood for psychological distress and physical health problems
·web.archive.org·
The minority stress perspective
Opinion | Stop Gaslighting The Left About Evangelicals. They Believe Awful Things About Jews
Opinion | Stop Gaslighting The Left About Evangelicals. They Believe Awful Things About Jews
One cannot achieve a healthy religious pluralism by pretending that robust mutual respect for religious diversity exists where it does not
One cannot achieve a healthy religious pluralism by pretending that robust mutual respect for religious diversity exists where it does not exist. Fostering healthy pluralism, which democracy demands, means confronting intolerance.
·forward.com·
Opinion | Stop Gaslighting The Left About Evangelicals. They Believe Awful Things About Jews
Empowerment against Evangelization: Countering Conversion Attempts by Asserting Moral Autonomy
Empowerment against Evangelization: Countering Conversion Attempts by Asserting Moral Autonomy
Some Confessions of a Past Proselytizer I remember how stressful it was for me, as a child and young adult, to believe I “had to” attempt to convert others to Christianity–specifi…
Remind yourself that shared values, rather than shared beliefs, are what matter when it comes to interacting with others, and that there is no replacement for doing the hard work of making yourself better. Being a good person is a process, not a status.
·cstroop.com·
Empowerment against Evangelization: Countering Conversion Attempts by Asserting Moral Autonomy
The Evangelical Pluralism Problem and its Media Enablers
The Evangelical Pluralism Problem and its Media Enablers
At this critical moment for American democracy our media landscape is doing a poor job in its coverage of conservative white evangelicals. Coverage of this relatively large segment of the population is characterized by, on the one hand, effusive praise for the slightest milquetoast criticism of Dona
pluralism celebrates the deeply held differences of people and institutions in a democratic society,”
I recently called for liberals and non-believers to take the navigation of pluralism seriously, to embrace pluralism as a liberal value, and to engage in discussions of how to fairly and meaningfully achieve equal accommodation in the public square. To do so, to my mind, requires an understanding emphasized by modern social contract theorists like Karl Popper that the toleration of intolerance must have limits, lest the intolerant use the machinery of a tolerant society to take power and end tolerance
·religiondispatches.org·
The Evangelical Pluralism Problem and its Media Enablers
The only way to save democracy from the Christian Right is by fighting for pluralism - The Conversationalist
The only way to save democracy from the Christian Right is by fighting for pluralism - The Conversationalist
“The path to social harmony and national unity is paved by compassion for and a genuine valuing of the stranger, those whose beliefs, practices, and so on, are different from those in the social, religious or political majority.”
Pluralism, of course, refers to people of diverse and conflicting beliefs coexisting peaceably, linked by their adherence to a shared social contract which commits members of different groups to treating others fairly and accommodating them equally in the public square
“It is in doing the work that we discover what we have in common,” he said, noting that the work itself leads to an appreciation of our differences.
So what might a liberal pluralism predicated on robust separation of church and state and equal accommodation in the public square look like? And how might we navigate the tensions not just between representatives of different confessions, but also between believers and non-believers?
It is self-evidently necessary for progressive atheists and agnostics to build coalitions with progressive believers and to work together toward the common good.
For Rev. Dr. Cari Jackson, RCRC’s Director of Spiritual Care and Activism, pluralism is associated above all with compassion. “To be compassionate requires decentering or stepping outside one’s own experiences in order to give priority to the experiences of others,” Jackson said. This task is more challenging, she added, for those who “are part of any privileged hegemony” because of “a limitation of experience and exposure.” Christianity represents one of these hegemonies, said Jackson. “For interfaith dialogues to be healthy and viable, now is a critical time for atheist perspectives to be included,” she said, adding: “The path to social harmony and national unity is paved by compassion for and a genuine valuing of the stranger, those whose beliefs, practices, and so on, are different from those in the social, religious or political majority.” Jeremy Forest Price, who is involved in interfaith work, agrees with Jackson on the importance of clear-eyed honesty regarding power dynamics and the importance of representation. “An emphasis on pluralism will help open up the discussion around religion (and worldviews, spiritualities, and the absence of religion) so that we can trace the ways that specific religious ideologies influence our shared public spaces,” he said.
While there are a number of specific fundamentalist Christian ideologies whose adherents refer to themselves as Dominionists (for example, Seven Mountains Dominionism), broadly defined, Christian dominionism simply refers to the beliefs and politics of Christians who pursue social domination over members of other groups by enshrining their religious beliefs in coercive law.
·conversationalist.org·
The only way to save democracy from the Christian Right is by fighting for pluralism - The Conversationalist
A Personal Update and Some Thoughts on Pluralism
A Personal Update and Some Thoughts on Pluralism
Hi, all! I know it has been a very long time since I’ve created any new content for this site. I never intended to go into blogging hiatus for seven months, but in the meantime I’ve bee…
Embracing pluralism is good citizenship.
·cstroop.com·
A Personal Update and Some Thoughts on Pluralism