When I realized that wearing headphones had helped me with anxiety in multiple ways/multiple places, I tried to check in with my sensory environment at least every few hours every day. Setting a re…
Understanding Stigma in Autism: A Narrative Review and Theoretical Model | Autism in Adulthood
The experience of stigma by autistic people is relatively understudied, despite contributing to a range of poor outcomes and having an overarching impact on well-being. The current review of the literature synthesizes research to determine what is currently known and presents a theoretical model of autism stigma. Autism stigma is primarily influenced by a public and professional understanding of autism in combination with interpretation of visible autistic traits. Moderating factors include the quality and quantity of contact with autistic people, cultural factors, sex and gender, individual differences, and diagnostic disclosure. Stigma can reduce well-being as well as increase the presence of camouflaging behaviors, which mask autistic traits. Caregivers of autistic people can experience stigma by association, that is, affiliate stigma, which can impact their own well-being. A variety of interventions and approaches to reduce stigma are discussed, including “autism friendly” spaces, positive media representation, educational and psychosocial training for the public and professionals, as well as cultural and systemic shifts that foster inclusivity and recognize neurodiversity.
Education about Autistic culture, the ND paradigm, and the ND movement – for medical professionals, by Autistic people
Join Autistic people from all over the world, committed to the de-stigmatisation of Autistic ways of being and other forms of neurodivergence, in support of the development and delivery of educatio…
Joint Hypermobility Links Neurodivergence to Dysautonomia and Pain
ObjectivesAutism, attention deficit hyperactivity disorder (ADHD), and tic disorder (Tourette syndrome; TS) are neurodevelopmental conditions that frequently co-occur and impact psychological, social, and emotional processes. Increased likelihood of chronic physical symptoms, including fatigue and pain, are also recognized. The expression of joint hypermobility, reflecting a constitutional variant in connective tissue, predicts susceptibility to psychological symptoms alongside recognized physical symptoms. Here, we tested for increased prevalence of joint hypermobility, autonomic dysfunction, and musculoskeletal symptoms in 109 adults with neurodevelopmental condition diagnoses.MethodsRates of generalized joint hypermobility (GJH, henceforth hypermobility) in adults with a formal diagnosis of neurodevelopmental conditions (henceforth neurodivergent group, n = 109) were compared to those in the general population in UK. Levels of orthostatic intolerance and musculoskeletal symptoms were compared to a separate comparison group (n = 57). Age specific cut-offs for GJH were possible to determine in the neurodivergent and comparison group only.ResultsThe neurodivergent group manifested elevated prevalence of hypermobility (51%) compared to the general population rate of 20% and a comparison population (17.5%). Using a more stringent age specific cut-off, in the neurodivergent group this prevalence was 28.4%, more than double than the comparison group (12.5%). Odds ratio for pre...
In neurodivergent adults, there is a strong link between the expression of joint hypermobility, dysautonomia, and pain, more so than in the comparison group. Moreover, joint hypermobility mediates the link between neurodivergence and symptoms of dysautonomia and pain. Increased awareness and understanding of this association may enhance the management of core symptoms and allied difficulties in neurodivergent people, including co-occurring physical symptoms, and guide service delivery in the future.
Evolution of a Theory: Polyvagal is Not Dead — Trauma Geek
I’ve been studying Polyvagal Theory (PVT) from primary sources and secondary summaries for about 5 years. This framework has allowed me to make sense of my own trauma symptoms and befriend my nervous system instead of working against it. I use PVT daily in my self-care strategies and in my relations
The Social Language Theory of Neurodivergence — Trauma Geek
We the neurodivergent are genetically different. We experience the world through a hypersensitive nervous system which informs every aspect of our thinking, our behavior, and our social values. The dominant social group labels our way of being in the world as disordered because they don’t understand
How intermittent breaks in interaction improve collective intelligence | Proceedings of the National Academy of Sciences
People influence each other when they interact to solve problems. Such social influence
introduces both benefits (higher average solution quality d...
SignificanceMany human endeavors—from teams and organizations to crowds and democracies—rely on solving problems collectively. Prior research has shown that when people interact and influence each other while solving complex problems, the average problem-solving performance of the group increases, but the best solution of the group actually decreases in quality. We find that when such influence is intermittent it improves the average while maintaining a high maximum performance. We also show that storing solutions for quick recall is similar to constant social influence. Instead of supporting more transparency, the results imply that technologies and organizations should be redesigned to intermittently isolate people from each other’s work for best collective performance in solving complex problems.AbstractPeople influence each other when they interact to solve problems. Such social influence introduces both benefits (higher average solution quality due to exploitation of existing answers through social learning) and costs (lower maximum solution quality due to a reduction in individual exploration for novel answers) relative to independent problem solving. In contrast to prior work, which has focused on how the presence and network structure of social influence affect performance, here we investigate the effects of time. We show that when social influence is intermittent it provides the benefits of constant social influence without the costs. Human subjects solved the canonical traveling salesperson problem in groups of three, randomized into treatments with constant social influence, intermittent social influence, or no social influence. Groups in the intermittent social-influence treatment found the optimum solution frequently (like groups without influence) but had a high mean performance (like groups with constant influence); they learned from each other, while maintaining a high level of exploration. Solutions improved most on rounds with social influence after a period of separation. We also show that storing subjects’ best solutions so that they could be reloaded and possibly modified in subsequent rounds—a ubiquitous feature of personal productivity software—is similar to constant social influence: It increases mean performance but decreases exploration.
The private equity firms, like Blackstone and KKR, behind 8 of the biggest names in autism therapy
Private equity investors are backing all of the major chains offering the country’s most popular form of autism therapy, ABA. But there are signs that those investors may be cooling on the industry.
Autistic people – The cultural immune system of human societies
The formation of worker owned cooperatives offers an alternative life path, especially for autistic and otherwise neurodivergent people, because it counterac...
Hearing aid affordability in the United States - PubMed
Hearing aids were unaffordable for three-fourths of Americans with functional hearing loss, and their purchase would result in impoverishment for hundreds of thousands of individuals. Reductions in out-of-pocket hearing aid costs to $500 or $1000 would alleviate affordability issues for many America …
Word rich or word poor? Deficit discourses, raciolinguistic ideologies and the resurgence of the ‘word gap’ in England’s education policy
Educational linguists across England and the USA have long critiqued deficit-based language ideologies in schools, yet since the early 2010s, these have enjoyed a marked resurgence in England’s edu...
Autistics working in academia: What are the barriers and facilitators? - Sandra C Jones, 2022
Autistic people are under-represented in university student populations, but their numbers are growing, and the barriers to their inclusion are being recognised...