Disabled people know the health care system is hostile. But it doesn’t have to be.
Laws like the ADA require only the bare minimum of care, and there is no enforcement. Compliance cannot be forced, even on people who do not see you as fully human or deserving of the right to access the same space.
Disabled people constantly navigate hostile environments, especially health care settings. Here people in positions of power can say whatever they want while patients have to give citations, articulate clearly and effectively, and have the presence of mind to push back during acute, potentially fast-moving situations. I have been advocating for my health with doctors since I was a child, but this latest experience shook me. They gaslit me about my valid concerns of mistreatment. Even with all my social capital and resources, I was reduced to nothing. I thought of all the patients on the same floor who were alone, scared, and suffering.
Disabled advocate Sarah Blahovec wrote that “creating access is a critical way of showing up in solidarity.” If we lived in a world that placed access above all, creating access would be a collective responsibility. In this world, cultures of care would ensure that carceral institutions like nursing homes are abolished; people, not profits, would be the priority; care would flow generously without restrictions from the state; and people like me would be secure knowing we are valued and wanted not for what we can produce but for who we are. This world—an accessible one centered on justice—would be ruled by a simple phrase always put into practice: “None of us are free until we all are free.”