Open Society

Open Society

5459 bookmarks
Custom sorting
Empathy and Autism: Establishing the Structure and Different Manifestations of Empathy in Autistic Individuals Using the Perth Empathy Scale - Journal of Autism and Developmental Disorders
Empathy and Autism: Establishing the Structure and Different Manifestations of Empathy in Autistic Individuals Using the Perth Empathy Scale - Journal of Autism and Developmental Disorders
Purpose There is a common mischaracterisation that autistic individuals have reduced or absent empathy. Measurement issues may have influenced existing findings on the relationships between autism and empathy, and the structure of the empathy construct in autism remains unclear. Methods The present study sought to address these gaps by examining the structure and psychometric properties of the Perth Empathy Scale (PES) in autistic individuals (N = 239) compared to non-autistic individuals (N = 690). Results Our moderated non-linear factor analysis revealed that the multidimensional empathy construct manifested similarly in autistic and non-autistic individuals, with the PES displaying good validity and reliability. Moreover, the results revealed that autistic individuals reported reduced cognitive empathy and reduced affective empathy for positive and negative emotions. However, there was greater heterogeneity of empathic tendencies in the autistic sample, indicating that these mean differences may not be generalisable for all autistic individuals. Conclusion The present study highlights that the PES is suitable for assessing empathy across autistic and non-autistic individuals. This work with the PES also provides greater nuance to our understanding of empathy and autism, and based on these findings, we propose the empathy heterogeneity hypothesis of autism as a new way of describing empathy in autism.
·link.springer.com·
Empathy and Autism: Establishing the Structure and Different Manifestations of Empathy in Autistic Individuals Using the Perth Empathy Scale - Journal of Autism and Developmental Disorders
Introduction to the Americans with Disabilities Act
Introduction to the Americans with Disabilities Act
The Americans with Disabilities Act (ADA) is a federal civil rights law that prohibits discrimination against people with disabilities in everyday activities.
·ada.gov·
Introduction to the Americans with Disabilities Act
Americans with Disabilities Act - National Parent Center on Transition and Employment
Americans with Disabilities Act - National Parent Center on Transition and Employment
The Americans with Disabilities Act (ADA) is the most comprehensive federal civil rights statute protecting the rights of people with disabilities. It affects access to employment; state and local government programs and services; access to places of public accommodation such as businesses, transportation, and nonprofit service providers; and telecommunications.
·pacer.org·
Americans with Disabilities Act - National Parent Center on Transition and Employment
The AI Tools That Gave Me Back My Time (and My Voice)
The AI Tools That Gave Me Back My Time (and My Voice)
From custom image descriptions to effortless meeting notes, these tools are game-changers.
AI has not only changed the way I work but also helped level the playing field in terms of accessibility and productivity. Sharing these tools with you is part of my advocacy, as I believe technology should empower everyone.
·medium.com·
The AI Tools That Gave Me Back My Time (and My Voice)
“Going Through Life on Hard Mode”—The Experience of Late Diagnosis of Autism and/or ADHD: A Qualitative Study | Autism in Adulthood
“Going Through Life on Hard Mode”—The Experience of Late Diagnosis of Autism and/or ADHD: A Qualitative Study | Autism in Adulthood
Background: In the United Kingdom, more than 2.5 million adults with undiagnosed neurodevelopmental conditions, such as autism and attention-deficit/hyperactivity disorder (ADHD), can face difficulties accessing diagnosis and support. Our qualitative study explores people’s experiences of receiving a diagnosis in adulthood and its impact on their lives. Methods: We conducted semi-structured interviews with seven health care professionals and 13 late-diagnosed adults (5 autistic, 5 with ADHD, and 3 with dual diagnoses) using reflexive thematic analysis. Results: We developed five themes from the analysis representing the journey and factors influencing participants’ experiences of receiving a late diagnosis: (1) the key role of relationships and mental well-being; (2) the wider impact on well-being and lifelong mental health; (3) understanding—the answer to postdiagnosis changes; (4) the flip side of diagnosis—the burden of a label; and (5) are you ready—the importance of timing. Conclusion: Our study demonstrates the multiple impacts a lack of diagnosis has and the many benefits experienced from receiving one. Although a lack of diagnosis can at times have some negative effects, the importance of understanding and the wider impacts on relationships and mental well-being are discussed. Primarily, the emerging concept of being ready and the importance of the right timing highlight an important nuance in the diagnosis journey.
Our study demonstrates the multiple impacts a lack of diagnosis has and the many benefits experienced from receiving one. Although a lack of diagnosis can at times have some negative effects, the importance of understanding and the wider impacts on relationships and mental well-being are discussed. Primarily, the emerging concept of being ready and the importance of the right timing highlight an important nuance in the diagnosis journey.
·liebertpub.com·
“Going Through Life on Hard Mode”—The Experience of Late Diagnosis of Autism and/or ADHD: A Qualitative Study | Autism in Adulthood
Autism escaped from the Clinic? We were never in there.
Autism escaped from the Clinic? We were never in there.
One of the retired Professors was reflecting on a lifetime in autism work. She said that a big change was the 'escape' of autism from the ...
·annsautism.blogspot.com·
Autism escaped from the Clinic? We were never in there.
Why “Move Fast and Break Things” Doesn’t Work Anymore
Why “Move Fast and Break Things” Doesn’t Work Anymore
Over the next few decades, agility will not come from speed; it will come from the ability to explore multiple domains at once and combine them into something that produces value. This means computer scientists working with cancer scientists, for example, to identify specific genetic markers that could lead to a cure. This change will be profound and we will need to rethink old notions about how we compete, collaborate, and bring new products to market. Here are three key shifts.
·hbr.org·
Why “Move Fast and Break Things” Doesn’t Work Anymore
Cognition in the Wild
Cognition in the Wild
Edwin Hutchins combines his background as an anthropologist and an open ocean racing sailor and navigator in this account of how anthropological methods can ...
·mitpress.mit.edu·
Cognition in the Wild
The Shareholder Supremacy - Better Offline - Omny.fm
The Shareholder Supremacy - Better Offline - Omny.fm
In this episode, Ed Zitron tracks the history of the growth-at-all-costs rot economy to a court case in 1916 that established the Shareholder Supremacy, and set the terms for General Electric's Jack Welch to fundamentally break capitalism, an era where companies moved away from building lasting, sustainable companies that created things and instead began focusing on pleasing shareholders - and how it leads to today's terrible tech companies and leaders. LINKS: https://tinyurl.com/betterofflinelinks Newsletter: wheresyoured.at Reddit: http://www.reddit.com/r/betteroffline Discord chat.wheresyoured.at Ed's Socials - http://www.twitter.com/edzitroninstagram.com/edzitronhttps://bsky.app/profile/zitron.bsky.socialhttps://www.threads.net/@edzitron
·omny.fm·
The Shareholder Supremacy - Better Offline - Omny.fm
Long COVID science, research and policy - Nature Medicine
Long COVID science, research and policy - Nature Medicine
This Review outlines the current state of scientific evidence on long COVID, discusses its impacts on patients, health systems, economies and global health metrics, and proposes a forward-looking research and policy roadmap.
Long COVID represents the constellation of post-acute and long-term health effects caused by SARS-CoV-2 infection; it is a complex, multisystem disorder that can affect nearly every organ system and can be severely disabling. The cumulative global incidence of long COVID is around 400 million individuals, which is estimated to have an annual economic impact of approximately $1 trillion—equivalent to about 1% of the global economy. Several mechanistic pathways are implicated in long COVID, including viral persistence, immune dysregulation, mitochondrial dysfunction, complement dysregulation, endothelial inflammation and microbiome dysbiosis. Long COVID can have devastating impacts on individual lives and, due to its complexity and prevalence, it also has major ramifications for health systems and economies, even threatening progress toward achieving the Sustainable Development Goals. Addressing the challenge of long COVID requires an ambitious and coordinated—but so far absent—global research and policy response strategy. In this interdisciplinary review, we provide a synthesis of the state of scientific evidence on long COVID, assess the impacts of long COVID on human health, health systems, the economy and global health metrics, and provide a forward-looking research and policy roadmap.
Long COVID is a complex, multisystem disorder that affects nearly every organ system, including the cardiovascular system4, the nervous system5,6,7,8, the endocrine system9,10,11, the immune system12,13, the reproductive system14 and the gastrointestinal system15. It affects people across the age spectrum (from children16,17,18 to older adults19,20), people of different race and ethnicities, sex and gender, and baseline health status21. Cardinal manifestations include brain fog (or cognitive dysfunction)7, fatigue, dysautonomia (which commonly manifests as postural orthostatic tachycardia syndrome (POTS))22 and post-exertional malaise23. Many of the health effects seen in long COVID are shared across several infection-associated chronic conditions, also called post-acute infection syndromes23,24,25,26.
·nature.com·
Long COVID science, research and policy - Nature Medicine
How to be an Effective Advocate for a Disabled Patient
How to be an Effective Advocate for a Disabled Patient
Disabled patients are rightfully terrified of being hospitalized. We are stripped of our agency and control in a hospital environment. Having an effective advocate can vastly improve the experience.
·disabledginger.com·
How to be an Effective Advocate for a Disabled Patient
Valerie Castile says the state’s new school-meals law is an investment in Minnesota’s kids—and a tribute to her son, Philando
Valerie Castile says the state’s new school-meals law is an investment in Minnesota’s kids—and a tribute to her son, Philando
After the police killing of Philando Castile, his mother, Valerie Castile, has helped raise more than $200,000 to pay off the cafeteria debt of kids who can’t afford school lunch. On Friday, Governor Tim Walz signed a bill providing a basic breakfast and lunch to every kid in Minnesota.
·sahanjournal.com·
Valerie Castile says the state’s new school-meals law is an investment in Minnesota’s kids—and a tribute to her son, Philando
Why Katie Ledecky initially kept her POTS diagnosis private
Why Katie Ledecky initially kept her POTS diagnosis private
Katie Ledecky, the most decorated U.S. female Olympian in history, wrote about her journey to her POTS diagnosis and initial decision to keep it private in her book “Just Add Water: My Swimming Life.”
·nbcwashington.com·
Why Katie Ledecky initially kept her POTS diagnosis private
Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients
Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients
Since 1969, Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) has been classified as a neurological disease in the International Classification of Diseases by the World Health Organization. Although numerous studies over time have uncovered organic abnormalities in patients with ME/CFS, and the majority of researchers to date classify the disease as organic, many physicians still believe that ME/CFS is a psychosomatic illness. In this article, we show how detrimental this belief is to the care and well-being of affected patients and, as a consequence, how important the education of physicians and the public is to stop misdiagnosis, mistreatment, and stigmatization on the grounds of incorrect psychosomatic attributions about the etiology and clinical course of ME/CFS.
·mdpi.com·
Why the Psychosomatic View on Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Is Inconsistent with Current Evidence and Harmful to Patients
The Covid Summer Games
The Covid Summer Games
You’ve probably seen by now that one of the stars of the Olympics collapsed in Paris last night with covid.
·donotpanic.news·
The Covid Summer Games
Enactive behaviour settings: situating agency, normativity and transformation | Philosophical Transactions of the Royal Society B: Biological Sciences
Enactive behaviour settings: situating agency, normativity and transformation | Philosophical Transactions of the Royal Society B: Biological Sciences
Behaviour settings are sociocultural places defined by three main ecological aspects: the affordances of material structures, typical patterns of skilful action and socially situated norms. These aspects explain the observed regularities of human ...
·royalsocietypublishing.org·
Enactive behaviour settings: situating agency, normativity and transformation | Philosophical Transactions of the Royal Society B: Biological Sciences
Kamala Harris's WEIRD strategy
Kamala Harris's WEIRD strategy
"Old and weird?" is linguistically interesting, and a new departure in political messaging. Let's see why.Edited with Gling AI: https://bit.ly/46bGeYv#lingui...
·youtube.com·
Kamala Harris's WEIRD strategy