Open Society

Open Society

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Monique Botha is actually they/them 🤷🏻‍♀️ on X: "One of my biggest pet peeves is when people hold neurodiversity aligning theories like the double empathy problem (first written about 12 years ago), to a substantially higher standards than old scool pathologizing ones that are three times older." / X
Monique Botha is actually they/them 🤷🏻‍♀️ on X: "One of my biggest pet peeves is when people hold neurodiversity aligning theories like the double empathy problem (first written about 12 years ago), to a substantially higher standards than old scool pathologizing ones that are three times older." / X
— Monique Botha is actually they/them 🤷🏻‍♀️ (@DrMBotha)
¡x.com¡
Monique Botha is actually they/them 🤷🏻‍♀️ on X: "One of my biggest pet peeves is when people hold neurodiversity aligning theories like the double empathy problem (first written about 12 years ago), to a substantially higher standards than old scool pathologizing ones that are three times older." / X
‘A certain magic’ – autistic adults’ experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis - Georgina Watts, Catherine Crompton, Catherine Grainger, Joseph Long, Monique Botha, Mark Somerville, Eilidh Cage, 2024
‘A certain magic’ – autistic adults’ experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis - Georgina Watts, Catherine Crompton, Catherine Grainger, Joseph Long, Monique Botha, Mark Somerville, Eilidh Cage, 2024
There is an increasing focus on research exploring autistic communication and community. In this review, we systematically collate and analyse how autistic adul...
Research has suggested that autistic people enjoy spending time with other autistic people and find them easier to talk to. We wanted to find out what autistic people say about spending time with other autistic people and whether this makes their life better. We found 52 papers which described this and reviewed what they found. We found that many autistic people had positive experiences of spending time with other autistic people and these experiences had positive impact on their lives in a range of different ways. The papers did not tell us whether this also happens for autistic people with a learning disability. More research is needed to find out more about why spending time with other autistic people helps some autistic people.
Studies suggest autistic people experience better rapport (Crompton, Sharp, et al., 2020) and more effective communication (Crompton, Ropar, et al., 2020) when interacting with autistic people rather than non-autistic people. Autistic adolescents are more likely to initiate and reciprocate interactions with autistic than non-autistic peers (Chen et al., 2021).
Studies indicate community contact may benefit QoL for autistic people. Contact with other autistic people provides access to narratives challenging deficit-based perceptions of autistic personhood facilitating positive autistic social identities (Kapp et al., 2013). Increased identification with a positive autistic social identity has been associated with better mental health and may mediate the impact of stigma on well-being (R. Cooper et al., 2021).
Furthermore, successful communication experiences (Crompton, Ropar, et al., 2020) and rapport (Rifai et al., 2022) between autistic people may have a positive impact on QoL (Black et al., 2022). Distinctly autistic social communication styles may facilitate communication and friendships between autistic people (Heasman & Gillespie, 2019), benefitting QoL domains including Social Inclusion and Interpersonal Relations.
The magic referred to in this theme title reflects the idea something special occurs within autistic-autistic interactions; ‘when two autistic people are together in the same room or even linked by written communication, a certain magic is created, like, electricity in the air’ (Schneid & Raz, 2020, p. 5). This is relevant to Social Inclusion and Interpersonal Relations QoL domains – different aspects of this phenomenon are captured by four subthemes.
Being ‘One of us’ reflects a sense of shared identity and belonging within a group expressed across multiple papers. Autistic people recognised themselves in others and shared experiential knowledge, meaning they felt understood and accepted. Schneid and Raz (2020) described how all of their autistic participants ‘said that autists would understand them better’ (p. 5). Mutual understanding between autistic people created a sense of closeness. Many papers echoed experiences described by Botha and Frost (2020) as ‘The space among autistic people was presented as safe, validating and supportive’ (p. 8). Acceptance and shared understanding with other autistic people were associated with an increased sense of belonging: As lovely as all my neurotypical friends are, I feel I belong there [with autistic people], and I am like everybody else. I have never had that before . . . I feel like I understand people and they understand me. (Crompton, Ropar, et al., 2020, p. 1444) This sense of Social Inclusion contrasted with previous experiences of interactions with non-autistic people, with many describing joy on discovering “wow, there are others like me!” (Mattys et al., 2018, p. 328) and a sense of relief: “Finally I’m not alone” (Tan, 2018, p. 166).
Many participants said Interpersonal Relations with other autistic people were easier than with non-autistic people. ‘Ease of communication’ was frequently described as speaking the same language: ‘With autistic people, who speak my language . . . it goes fantastically well most of the time’ (Livingston et al., 2019, p. 771). Participants believed ‘communication styles were similar between autistic people, and this made interactions more comfortable that it was easier to follow conversations and understand what people mean’ (Crompton, Hallett, et al., 2020, p. 1443), which meant ‘interactions with autistic people were less effortful and tiring’ (Cummins et al., 2020, p. 684). Participants emphasised the facilitating role of acceptance: ‘Being in these comfortable and accepting environments ‘allows [them] to relax [and] be able to communicate effectively and honestly’’ (Howard & Sedgewick, 2021, p. 2272).
¡journals.sagepub.com¡
‘A certain magic’ – autistic adults’ experiences of interacting with other autistic people and its relation to Quality of Life: A systematic review and thematic meta-synthesis - Georgina Watts, Catherine Crompton, Catherine Grainger, Joseph Long, Monique Botha, Mark Somerville, Eilidh Cage, 2024
“Almost Human”: The Borg as a Metaphor for Societal Ableism - Uncanny Magazine
“Almost Human”: The Borg as a Metaphor for Societal Ableism - Uncanny Magazine
The world of the cyborgs has always belonged to the disabled, those of us who walk, roll, crutch, and dance our way along the line between man and machine. While Donna Hathaway, in her seminal essay “A Cyborg Manifesto,” defined cyborgs as an intensely feminist concept, transcending mundane, mid-20th-century concepts of gender (and interestingly, of […]
¡uncannymagazine.com¡
“Almost Human”: The Borg as a Metaphor for Societal Ableism - Uncanny Magazine
a lot of things are true.
a lot of things are true.
the refusal to grasp this is a non-trivial amount of the problem
¡lifeisasacredtext.com¡
a lot of things are true.
Mutual Aid and the Criminalization of Compassion: Humanitarian Aid Must Never Be A Crime
Mutual Aid and the Criminalization of Compassion: Humanitarian Aid Must Never Be A Crime
Art by Declan Byrne (Belfast, Ireland); quote by Angela Davis Mutual aid is your neighbor bringing over a freshly baked blueberry pie because they know you love that kind and they love to bake. It’s the fourteen-year-old down the street who mows the lawn of
¡mutualaiddisasterrelief.org¡
Mutual Aid and the Criminalization of Compassion: Humanitarian Aid Must Never Be A Crime
Toward a Luddite Pedagogy
Toward a Luddite Pedagogy
An especially objectionable feature of the edtech discourse is its use of the word “Luddite” as a term of abuse. Uttering “You’re a Luddite” to the edtech sceptic is an act of verbal expectoration that is supposed to end the conversation, dismissing the sceptic as someone suffering from an
¡hybridpedagogy.org¡
Toward a Luddite Pedagogy
The Language of Disability
The Language of Disability
I'm hoping to organise a third Blogging Against Disablism Day this May 1st. Shortly before the first BADD, I wrote a Brief Guide to the La...
¡blobolobolob.blogspot.com¡
The Language of Disability
(PDF) Students as human resources in the corporatised school
(PDF) Students as human resources in the corporatised school
PDF | The transfer of human resource management (HRM) practices from the corporate business context into schools has taken a novel turn. No longer... | Find, read and cite all the research you need on ResearchGate
The transfer of human resource management (HRM) practices from the corporate business context into schools has taken a novel turn. No longer restricted to the management of school teachers, HRM techniques are now being applied to the management of students. HRM views the student as a human resource to serve the school, and seeks to systematically regulate students’ identities in order to align them with school values and goals. This article introduces the Uncommon Schools model as an exemplar of student-centred HRM. The case study demonstrates how student-centred HRM is being operationalised in schools and concludes by exploring the potential effects on students of existing within an HRM system. The article is informed by critical management theories and argues that student-centred HRM constitutes a radical shift in the relationship between school and student.
¡researchgate.net¡
(PDF) Students as human resources in the corporatised school
Rejection Sensitivity Dysphoria (RSD): A Guide for Autistic Humans — The #ActuallyAutistic Coach
Rejection Sensitivity Dysphoria (RSD): A Guide for Autistic Humans — The #ActuallyAutistic Coach
Rejection Sensitivity Dysphoria (RSD) is a significant and often challenging aspect of life for most autistic humans. It profoundly impacts our mental health and daily functioning. I will aim to shed light on what RSD is, how it affects us, and strategies for managing it effectively. RSD is an extr
¡theautisticcoach.com¡
Rejection Sensitivity Dysphoria (RSD): A Guide for Autistic Humans — The #ActuallyAutistic Coach
Autism Language Preference Survey 2024 - Emergent Divergence
Autism Language Preference Survey 2024 - Emergent Divergence
This page houses the results of the Autism Language Preference Survey 2024. It is a growing body of work that will be added to. Currently available is the Autistic vs. Non-Autistic results. Language-Preference-AUvNAuDownload
¡emergentdivergence.com¡
Autism Language Preference Survey 2024 - Emergent Divergence
Homeschooled and Kept Ignorant, But Still Queer: Melissa
Homeschooled and Kept Ignorant, But Still Queer: Melissa
“Sometimes I wish that I hadn’t had to spend so much of my life living someone else’s idea of who I needed to be. It has been quite the task to learn how to relax and just be rather than seco…
¡homeschoolersanonymous.net¡
Homeschooled and Kept Ignorant, But Still Queer: Melissa
Maker's Schedule, Manager's Schedule
Maker's Schedule, Manager's Schedule
When you're operating on the maker's schedule, meetings are a disaster. A single meeting can blow a whole afternoon, by breaking it into two pieces each too small to do anything hard in. Plus you have to remember to go to the meeting. That's no problem for someone on the manager's schedule. There's always something coming on the next hour; the only question is what. But when someone on the maker's schedule has a meeting, they have to think about it.For someone on the maker's schedule, having a meeting is like throwing an exception. It doesn't merely cause you to switch from one task to another; it changes the mode in which you work.
¡paulgraham.com¡
Maker's Schedule, Manager's Schedule
The Future of Neurodiversity - Boston Review
The Future of Neurodiversity - Boston Review
The movement has made important progress, but focusing on rights and representation leaves too many behind.
¡bostonreview.net¡
The Future of Neurodiversity - Boston Review
Emily♡ on X: "A question for autistic and ADHD people! (please only answer if you’re okay with being quoted anonymously) What do you find challenging about accessing and receiving healthcare as an autistic/ADHD person?" / X
Emily♡ on X: "A question for autistic and ADHD people! (please only answer if you’re okay with being quoted anonymously) What do you find challenging about accessing and receiving healthcare as an autistic/ADHD person?" / X
What do you find challenging about accessing and receiving healthcare as an autistic/ADHD person? — Emily♡ (@ItsEmilyKaty)
¡x.com¡
Emily♡ on X: "A question for autistic and ADHD people! (please only answer if you’re okay with being quoted anonymously) What do you find challenging about accessing and receiving healthcare as an autistic/ADHD person?" / X
Challenges Autistic and ADHD People Face at Work and What Can Help — Authentically Emily
Challenges Autistic and ADHD People Face at Work and What Can Help — Authentically Emily
Autistic and ADHD people have long struggled in the workplace. According to the Office for National Statistics, in 2021 only 29% of autistic people in the UK between 16-64 years old were employed (though of course, this is out of those recognised as autistic).
¡authenticallyemily.uk¡
Challenges Autistic and ADHD People Face at Work and What Can Help — Authentically Emily
Challenges Autistic People and ADHDers Face in Therapy and What Can Help — Authentically Emily
Challenges Autistic People and ADHDers Face in Therapy and What Can Help — Authentically Emily
I remember being fourteen, sat in a CBT (Cognitive Behavioural Therapy) session and being completely bewildered by what the lady was trying to teach me. I was having daily panic attacks - some of them more likely meltdowns - because I was so overwhelmed. I began describing how I didn’t want to go in
¡authenticallyemily.uk¡
Challenges Autistic People and ADHDers Face in Therapy and What Can Help — Authentically Emily
Challenges Autistic and ADHD Children Face at School and What Can Help — Authentically Emily
Challenges Autistic and ADHD Children Face at School and What Can Help — Authentically Emily
There is a reason why 92.1% of children with school attendance difficulties are neurodivergent, with 83.5% being autistic (according to one sample by Connolly & Mullally, 2022). And why children with Special Educational Needs are 50% more likely to struggle with school attendance (Office for
¡authenticallyemily.uk¡
Challenges Autistic and ADHD Children Face at School and What Can Help — Authentically Emily
Neuroqueer frontiers: Neurodiversity, gender, and the (a)social self
Neuroqueer frontiers: Neurodiversity, gender, and the (a)social self
This paper critically synthesizes leading edge scholarship on neurodiversity, arguing that sociology could expand its account for the relationship between self and society through attention to the (a...
¡compass.onlinelibrary.wiley.com¡
Neuroqueer frontiers: Neurodiversity, gender, and the (a)social self
Why we need to change schools (right now). | Human Restoration Project | Chris McNutt
Why we need to change schools (right now). | Human Restoration Project | Chris McNutt
We need to recognize that youth and educators are in crises – and that schools need to change. It’s no longer warning bells – we are in a state of emergency. Published by Human Restoration Project, a 501(c)3 organization restoring humanity to education.
¡humanrestorationproject.org¡
Why we need to change schools (right now). | Human Restoration Project | Chris McNutt