Open Society

Open Society

5209 bookmarks
Custom sorting
The Intersection of Autism and Transgender and Nonbinary Identities: Community and Academic Dialogue on Research and Advocacy | Autism in Adulthood
The Intersection of Autism and Transgender and Nonbinary Identities: Community and Academic Dialogue on Research and Advocacy | Autism in Adulthood
Many transgender people are autistic. Community expressions of the autism transgender intersection abound. Some commentators have questioned the proportional overrepresentation of autism among gender-diverse people, suggesting these individuals may not be truly autistic or truly transgender. However, increasing evidence challenges assertions that deny the authenticity of co-occurring autistic and transgender identities. Specifically, research by authors of this article indicates autistic transgender people show neurophenotypes generally consistent with cisgender autistic people and implicit gender phenotypes consistent with nonautistic transgender people. This article features a dialogue between eight leading experts in the field of intersectional autism and gender diversity, including clinicians, researchers, community advocates, and experts who are themselves autistic transgender. Key topics of discussion included: how research findings on autism and gender diversity inform respectful and supportive responses to autistic transgender people; the benefits and harms of increased societal attention toward the autism transgender intersection; and research and advocacy priorities. The expert panel concluded the following: (1) it is important to respect transgender autistic people's wellness and resilience, while also acknowledging the pathologization and stigmatization they face; (2) autistic gender-diverse people are experts of their own identity and should be involved in all aspects of research and clinical care; (3) research is needed to understand the disparities autistic transgender people face; (4) attempts to restrict autistic transgender people's access to gender care are unsupported by existing research; (5) adult gender care may benefit from incorporating universal design principles and neurodiversity-affirming strategies to reduce barriers to care and improve clinician–client communication in treatment delivery and the informed consent process; (6) cross-cultural and cross-societal research will improve best care practices in diverse contexts; (7) research and advocacy must be inclusive across ethnoracial identities, including in leadership and perspectives represented; and (8) a life span developmental framework is needed for adult research in this field.
·liebertpub.com·
The Intersection of Autism and Transgender and Nonbinary Identities: Community and Academic Dialogue on Research and Advocacy | Autism in Adulthood
Gendervague: At the Intersection of Autistic and Trans Experiences (repost)
Gendervague: At the Intersection of Autistic and Trans Experiences (repost)
Someone who is gendervague cannot separate their gender identity from their neurodivergence – being autistic doesn’t cause my gender identity, but it is inextricably related to how I understand and experience gender.
please note that I am not the person who came up with the word "gendervague." I don't know who did, but I've seen sources around the internet attributing it to me, which is incorrect. The word was in wide use among other autistic people before I found out about it.
More recently, I’ve started referring to myself as gendervague, a term coined within the autistic community to refer to a specifically neurodivergent experience of trans/gender identity. For many of us, gender mostly impacts our lives when projected onto us through other people’s assumptions, but holds little intrinsic meaning.
Someone who is gendervague cannot separate their gender identity from their neurodivergence – being autistic doesn’t cause my gender identity, but it is inextricably related to how I understand and experience gender. Autistic people’s brains are fundamentally different from those of anyone who is assumed to be “normal” or “healthy.” For many (but certainly not all) autistic people, we can’t make heads or tails of either the widespread assumption that everyone fits neatly into categories of men and women or the nonsensical characteristics expected or assumed of womanhood and manhood. Recent research has shown that autistic people are more likely to identify as transgender or genderqueer than non-autistic people. That’s not surprising to me, because I’ve met far more trans or genderqueer people in autistic spaces than I have anywhere else.
Many of us are used to being outcasts for our atypical communication, sensory experiences, emotional expressions, and behavior. For some of us autistic people, that constant outsider status makes it easier to figure out that we fall somewhere along the transgender or genderqueer spectrum since we’re already used to not fitting in, or at least, it’s harder for us to hide outward gender non-conformity. The advent of social media has also been a welcome boon for those of us uncomfortable with or incapable of consistent face-to-face interaction, allowing us to safely explore new concepts and meet people with similar experiences.
·autistichoya.com·
Gendervague: At the Intersection of Autistic and Trans Experiences (repost)
The Ironies of Schooling
The Ironies of Schooling
With this post, I am announcing the publication of my new book, The Ironies of Schooling. It’s available as both an e-book and paperback.  As I did with my last book, Being a Scholar, I publi…
·davidlabaree.blog·
The Ironies of Schooling
Make better documents. - Anil Dash
Make better documents. - Anil Dash
A blog about making culture. Since 1999.
A related technique is to spray them with bullets. Bullet points are a super powerful way to make content more skimmable for an audience, and perform a useful forcing function in making you edit your points down to be concise and roughly consistent. One less-obvious benefit of using bullet points is that it can often reveal to you as an author whether the information that you're providing is all in the same category. In prose, it can be easy to sometimes drift off-topic into unrelated topics, but with bullets, if you've got a list that has items which are very evidently out of place, it can be more evident.
It is far better to have white space on the screen for your audience than to fill up that space with a graphic that has no meaning, especially if it's not specific to your context or message.
·anildash.com·
Make better documents. - Anil Dash
Neuroqueer theory and what it is to be human - Emergent Divergence
Neuroqueer theory and what it is to be human - Emergent Divergence
I understand now that boundaries between noise and sound are conventions. All boundaries are conventions, waiting to be transcended. One may transcend any convention if only one can first conceive of doing so. David Mitchell, Cloud Atlas The question of what it is to neuroqueer oneself is a question of the limits on humanity. What
We deconstruct the boundaries around what it means to be human. Thus, neuroqueering is more than the changing of one’s neurology, or the alteration of one’s embodiment. It is embracing a reality within which the only boundaries, the only convention, on what it is to be human are the limits of one’s imagination.
We are undefining what it means to be human. Through intentional acts of subverting meaning and intention, we deconstruct the masters house of Walker’s (2021) Neuroqueer Heresies.
To be human is to be me. To be me is to understand the human experience through the bodymind I exist within. This experience constitutes my life. Therefore, to neuroqueer is to fundamentally alter my human Self. I am testing the conventions that we have been taught define a human. Any change to my neurocognitive style fundamentally alters my humanity. By neuroqueering we are creating new iterations of human life.
·emergentdivergence.com·
Neuroqueer theory and what it is to be human - Emergent Divergence
(1) Facebook
(1) Facebook
only the fresh air from millions upon millions of freely made choices will create the educational climate we need to realize a better destiny. No team of experts can possibly possess the wisdom to impose a successful solution to the problem inherent in a philosophy of centralized social management; solutions that endure are always local, always personal. Universal prescriptions are the problem of modern schooling, academic research which pursues the will-o-the-wisp of average children and average stages of development makes for destructive social policy, it is a sea anchor dragging against advancement, creating the problems it begs for money to solve. But here is a warning: should we ever agree to honor the singularity of children which forced schooling contravenes, if we ever agree to set the minds of children free, we should understand they would make a world that would create and re-create itself exponentially, a world complex beyond the power of any group of managers to manage. Such free beings would have to be self-managing. And the future would never again be easily predictable.
·facebook.com·
(1) Facebook
John Taylor Gatto (1935-2018): Remembering America's Most Courageous Teacher
John Taylor Gatto (1935-2018): Remembering America's Most Courageous Teacher
It is with a heavy heart that we mourn the passing of a revolutionary educator, John Taylor Gatto. Gatto understood that his students were not mere underlings, but individuals with unique skills and talents to share with the rest of the world. They didn’t want to be talked down to but longed to be treated with respect and dignity. He recognized that their worth was not determined by the neighborhoods where they lived, their parents’ annual salaries, or the scores they received on standardized tests.
You either learn your way towards writing your own script in life or you become an unwitting actor in somebody else’s script.
“School is a twelve-year jail sentence where bad habits are the only curriculum truly learned. I teach school and win awards doing it. I should know.”“It is absurd and anti-life to be part of a system that compels you to sit in confinement with people of exactly the same age and social class. That system effectively cuts you off from the immense diversity of life and the synergy of variety; indeed, it cuts you off from your own past and future, sealing you in a continuous present much the same way television does. It is absurd and anti-life to move from cell to cell at the sound of a gong for every day of your natural youth in an institution that allows you no privacy and even follows you into the sanctuary of your home, demanding that you do its “homework.” “How will they learn to read?” you ask, and my answer is “Remember the lessons of Massachusetts.” When children are given whole lives instead of age-graded ones in cellblocks they learn to read, write, and do arithmetic with ease, if those things make sense in the kind of life that unfolds around them.”
I’ve come slowly to understand what it is I really teach: A curriculum of confusion, class position, arbitrary justice, vulgarity, rudeness, disrespect for privacy, indifference to quality, and utter dependency. I teach how to fit into a world I don’t want to live in.I just can’t do it anymore. I can’t train children to wait to be told what to do; I can’t train people to drop what they are doing when a bell sounds; I can’t persuade children to feel some justice in their class placement when there isn’t any, and I can’t persuade children to believe teachers have valuable secrets they can acquire by becoming our disciples. That isn’t true.
Children learn what they live. Put kids in a class and they will live out their lives in an invisible cage, isolated from their chance at community; interrupt kids with bells and horns all the time and they will learn that nothing is important or worth finishing; ridicule them and they will retreat from human association; shame them and they will find a hundred ways to get even. The habits taught in large-scale organizations are deadly.
“Independent study, community service, adventures and experience, large doses of privacy and solitude, a thousand different apprenticeships—the one-day variety or longer—these are all powerful, cheap, and effective ways to start a real reform of schooling. But no large-scale reform is ever going to work to repair our damaged children and our damaged society until we force open the idea of “school” to include family as the main engine of education. If we use schooling to break children away from parents—and make no mistake, that has been the central function of schools since John Cotton announced it as the purpose of the Bay Colony schools in 1650 and Horace Mann announced it as the purpose of Massachusetts schools in 1850—we’re going to continue to have the horror show we have right now.”“Whatever an education is, it should make you a unique individual, not a conformist; it should furnish you with an original spirit with which to tackle the big challenges; it should allow you to find values which will be your road map through life; it should make you spiritually rich, a person who loves whatever you are doing, wherever you are, whomever you are with; it should teach you what is important, how to live and how to die.”
·fee.org·
John Taylor Gatto (1935-2018): Remembering America's Most Courageous Teacher
I quit, I think – Education Revolution | Alternative Education Resource Organization
I quit, I think – Education Revolution | Alternative Education Resource Organization
I’ve come slowly to understand what it is I really teach: A curriculum of confusion, class position, arbitrary justice, vulgarity, rudeness, disrespect for privacy, indifference to quality, and utter dependency. I teach how to fit into a world I don’t want to live in. I just can’t do it anymore. I can’t train children to wait to be told what to do; I can’t train people to drop what they are doing when a bell sounds; I can’t persuade children to feel some justice in their class placement when there isn’t any, and I can’t persuade children to believe teachers have valuable secrets they can acquire by becoming our disciples. That isn’t true. Government schooling is the most radical adventure in history. It kills the family by monopolizing the best times of childhood and by teaching disrespect for home and parents.
·educationrevolution.org·
I quit, I think – Education Revolution | Alternative Education Resource Organization
9 Elephants in the (Class)Room That Should “Unsettle” Us - Will Richardson
9 Elephants in the (Class)Room That Should “Unsettle” Us - Will Richardson
At a recent morning workshop for school leaders at a fairly small New England public school district, about an hour into a conversation focused on what they believed about how kids learn best, an assistant superintendent somewhat surprisingly said aloud what many in the room were no doubt feeling. “When I really try to square […]
·willrichardson.com·
9 Elephants in the (Class)Room That Should “Unsettle” Us - Will Richardson
What Does it Mean to Be Educated?
What Does it Mean to Be Educated?
A treatise on advancing real education by rising above the outdated, coercive schooling model of centuries past by Blake Boles (originally published in Tipping Points Magazine May 2017)
“How strange and self-defeating that a supposedly free country should train its young for life in totalitarianism.”
“Teachers spend half their time shouting themselves hoarse, and young adults are infantilized. Their lives are absurdly regimented. Every minute is accounted for. They sit in one hot room after another and wait for each class to end. Time thickens. It becomes like saltwater taffy — it becomes viscous and sticky, and it stretches out and it folds back on itself through endless repetition.”
“You need to get a job, but you also need to get a life. What’s the return on investment in college? What’s the return on investment of having children, spending time with friends, listening to music, reading a book? The things that are most worth doing are worth doing for their own sake. Anyone who tells you that the sole purpose of education is the acquisition of negotiable skills is attempting to reduce you to a productive employee at work, a gullible consumer in the market, and a docile subject of the state.”
“Whatever an education is, it should make you a unique individual, not a conformist; it should furnish you with an original spirit with which to tackle the big challenges; it should allow you to find values which will be your roadmap through life; it should make you spiritually rich, a person who loves whatever you are doing, wherever you are, whomever you are with; it should teach you what is important, how to live and how to die.”
an education is the capacity to author your own life instead of merely accepting the one handed to you.
But authoring your own life doesn’t necessarily mean choosing a radically different path from that of your family, religion, or culture. It simply demands an examined, informed choice rather than a blind or coerced one.
When you choose your own path, you are free to choose from one of life’s many established routes. There’s nothing wrong with becoming an accountant, plumber, or stay-at-home parent. But if you take one of these paths as an educated person, it means that you’re not just doing it because someone told you so. You’re doing it because you understand your commitment, you’re aware of your alternatives, and you genuinely believe that you are making this choice for yourself.
Intrinsic motivation is what we need more of in this world. History is one long bloody record of wars, slavery, servitude, religious persecution, and other forms of extrinsic motivation — with one brief, bright window in the last 200 or 100 or 50 years (depending on who we’re talking about) where common people actually had the chance to do their own thing.
Yet extrinsic motivation is so clearly the lifeblood of schooling, with its elaborate system of grades, gold stars, class rankings, detentions, and low-level threats. This makes sense in light of self-determination theory, because school does little to fulfill students’ basic needs for autonomy, competence, and relatedness.
Competence cannot develop in school because students are forced to learn a little about everything and deeply about nothing. And if your interests lie outside the traditional academic subjects — if, let’s say, you want to design video games — you stand almost zero chance of developing mastery while at school.
Relatedness, which means having high-quality personal relationships and a sense of belonging, is perhaps the young person’s most pressing need. But how can relatedness develop in the tightly regulated sphere of the classroom and the fleeting moments of lunch and recess? The social environment of school more closely resembles The Lord of the Flies than any actual community.
Whatever an education is, it must empower you to lead your own life. It must minimize your chances of being manipulated, of being made a pawn, of being an actor in someone else’s play. Any place that claims to “educate” must give young people actual autonomy, help them develop actual competencies, and facilitate actual social connections. It must produce self-aware and self-motivated humans, not anxiety-riddled worker bees awaiting their next orders. Places of education must lift people up and bring them together — as we envision the ideal of school — not crush their spirits and isolate them — as too often is the reality of school. But do such places exist? Can they exist?
Grace Llewellyn observed in the nineties that homeschooling, which had recently become legal in all fifty United States, was the quickest path to educational freedom for young people. Llewellyn made it her mission to promote homeschooling, but not in its traditional, religiously-affiliated form; she advocated for unschooling — the more radical, self-directed version of homeschooling — and started a summer camp for teenage unschoolers called Not Back to School Camp (where I’ve worked for more than a decade). Today in the United States, you can leave school early and be supported by countless local groups, online communities, and conferences. Homeschool “graduates” experience few barriers to entering college and the workplace. And you don’t have to just choose between homeschooling and unschooling: families are now experimenting with micro-schooling, worldschooling, and other novel variations of homeschooling that offer varying levels of structure, freedom, and formal academics.
Democratic free schools are places where all members of the school have an equal vote on all matters of substance, including the hiring and firing of staff. (Yes, even the 5 year olds get to vote on who to hire!) Such schools were very popular in the late sixties and early seventies and then dropped off the map — but one of them, the Sudbury Valley School, has doggedly persisted since 1968. Largely thanks to the Sudbury’s leadership, the nineties and early 2000s saw a boom in Sudbury-model schools and other democratic schools, both in the U.S. and around the world.
If public school is a sinking ship that does very little actual educating, then I don’t think we help ourselves by rallying around it. I think that privileged families can do more good by experimenting with radical educational alternatives, some of which will fizzle, but some of which will have potential for widespread application. This is how innovations happen: early adopters pave the way for mainstream users. We are not lacking for resources in education, we are lacking for good ideas. These good ideas will not arise from dogged fidelity to the broken old system, but rather from countless little educational experiments, both public and private, combined with novel mechanisms for vaulting the best ideas into stardom, like the recent XQ Super School Project which awarded $50 million to innovative new high school models. John Taylor Gatto’s prescription for fixing the system hits the nail on the head: “only the fresh air from millions upon millions of freely made choices will create the educational climate we need to realize a better destiny.”
·seedsofsde.substack.com·
What Does it Mean to Be Educated?
Spicy Mind
Spicy Mind
I recently discovered the word 'neurospicy', to describe neurodivergence. Naturally, I wrote a poem about it. Enjoy! Spicy Mind I have a spi...
I have a spicy mind. It doesn’tdo what people tell it to. It’s often very friendly but thensometimes it’ll yell at you. It’s like a pair of horses pullingeach their separate way at once,or else it is a jester witha chestful of annoying stunts. I have a spicy mind. It oftenmakes me want to scream and shout. It’s like a tiger, locked up ina cage, that simply can’t get out. It throws me lots of curveballsand it’s riddled with anxiety. It conjures ways to trick mewith its impish impropriety. I have a spicy mind. I guessit’s tiring, but I’ve grown to learn that often it’s delectabledespite the way my brain can burn. My mind belongs to me, you seeI think that I am stuck with it,so stick it in your recipeand come and try your luck with it!
·joshuaseigalpoet.blogspot.com·
Spicy Mind
Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults
Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults
One in 68 Americans has autism spectrum disorder (ASD), and diagnosis is often delayed into adulthood in individuals without comorbid intellectual disability. Many undiagnosed adults resort to self-diagnosis. The purpose of this descriptive phenomenology was to explore the experience of realizing a self-diagnosis of ASD among 37 individuals who were not formally diagnosed. Results revealed five themes: feeling “othered,” managing self doubt, sense of belonging, understanding myself, and questioning the need for formal diagnosis.
·psychiatricnursing.org·
Exploring the Experience of Self-Diagnosis of Autism Spectrum Disorder in Adults
The Re•Storying Autism Collective, "Autistic, Surviving, and Thriving Under COVID-19: Imagining Inclusive Autistic Futures—A Zine Making Project" - Lateral
The Re•Storying Autism Collective, "Autistic, Surviving, and Thriving Under COVID-19: Imagining Inclusive Autistic Futures—A Zine Making Project" - Lateral
This article takes up Mia Mingus’ call to “leave evidence” of how we have lived, loved, cared, and resisted under ableist neoliberalism and necropolitics during COVID-19 . We include images of artistic work from activist zines created online during the COVID-19 pandemic and led by the Re•Storying Autism Collective. The zines evidence lived experiences of crisis and heightening systemic and intersectional injustices, as well as resistance through activist art, crip community, crip knowledges, digital research creation, and the forging of collective hope for radically inclusive autistic futures—what zine maker Emily Gillespie calls “The neurodivergent, Mad, accessible, Basic Income Revolution.” We frame the images of artistic work with a coauthored description of the Collective’s dream to create neurodivergent art, do creative research, and work for disability justice under COVID-19. The zine project was a gesture of radical hope during crisis and a dream for future possibilities infused with crip knowledges that have always been here. We contend that activist digital artmaking is a powerful way to archive, theorize, feel, resist, co-produce, and crip knowledge, and a way to dream collectively that emerged through the crisis of COVID-19. This is a new, collective, affective, and aesthetic form of evidence and call for “forgetting” ableist capitalist colonialism and Enlightenment modes of subjectivity and knowledge production that target different bodies to exploit, debilitate, and/or eliminate, and to objectify and flatten what it means to be and become human and to thrive together.
·csalateral.org·
The Re•Storying Autism Collective, "Autistic, Surviving, and Thriving Under COVID-19: Imagining Inclusive Autistic Futures—A Zine Making Project" - Lateral
Re•Storying Autism - Home
Re•Storying Autism - Home
Re•Storying Autism is a critical and creative research project releasing multiple stories of autism made by autistic people and led by Patty Douglas from a neurodiversity affirming perspective.
·restoryingautism.com·
Re•Storying Autism - Home
What your neurodivergent colleagues wish you knew
What your neurodivergent colleagues wish you knew
In 2023, we asked members of Automattic’s neurodiversity ERG, ‘Neurodiverseomattic’, the question “What’s one thing you wish neurotypical people understood about your neurod…
·data.blog·
What your neurodivergent colleagues wish you knew
Time to RECLAIM PLAY - Upstart
Time to RECLAIM PLAY - Upstart
Dawn Ewan argues that play is not just 'for learning' - it's a biological drive underpinning holistic development. Children also need play for play's sake!
·upstart.scot·
Time to RECLAIM PLAY - Upstart
News: 'School is too much pressure'- young people identify school as a contributing factor to poor mental health - edpsy.org.uk
News: 'School is too much pressure'- young people identify school as a contributing factor to poor mental health - edpsy.org.uk
NEW: Join us at 6.15pm on 27th February as we talk to Maddi and Sarah live about this research. There’ll...
Key recommendations – 21st century learners Dr Popoola and Dr Sivers propose 5 key recommendations from the research: A move towards genuine and embedded trauma-informed and relational practices in schools. Which should include a shift from strict behaviour policies to relationship-based ones. The current educational system needs re-evaluating with a focus on finding ways to incorporate Self Determination Theory principles of Autonomy, Competence, and Relatedness across all layers of school-life. An update of the National Curriculum to be more in line with the needs and demands of 21st-century learners. Further exploration and appreciation of the digital lives that young people now live. This includes ensuring this environment is safe and also drawing on it as a way to motivate learning and support mental health in positive ways. Increased opportunities for all young people to have access to a range of activities that do not solely focus on academic ability or improvement, in and out of school. This should include sport, the arts, suitable in and outside spaces and a growth mindset outlook from all.
·edpsy.org.uk·
News: 'School is too much pressure'- young people identify school as a contributing factor to poor mental health - edpsy.org.uk
Ann Memmott PgC MA 🌈 (She/They) on X: "Absolutely right. We have a bizarre system that treats people as endless separate 'diagnoses', each with an endless wait to see someone. What on earth for? What a waste of money and time." / X
Ann Memmott PgC MA 🌈 (She/They) on X: "Absolutely right. We have a bizarre system that treats people as endless separate 'diagnoses', each with an endless wait to see someone. What on earth for? What a waste of money and time." / X
Absolutely right. We have a bizarre system that treats people as endless separate 'diagnoses', each with an endless wait to see someone. What on earth for? What a waste of money and time. https://t.co/Fd4ESs7Cty— Ann Memmott PgC MA 🌈 (She/They) (@AnnMemmott) April 8, 2024
·twitter.com·
Ann Memmott PgC MA 🌈 (She/They) on X: "Absolutely right. We have a bizarre system that treats people as endless separate 'diagnoses', each with an endless wait to see someone. What on earth for? What a waste of money and time." / X
Autistic people are often the targets of violence
Autistic people are often the targets of violence
Multiple studies show that autistic people may be at considerable risk for interpersonal violence & victimization
·autside.substack.com·
Autistic people are often the targets of violence
Understanding Autism
Understanding Autism
Filmmaker Scott Steindorff learns about Autism.
·pbssocal.org·
Understanding Autism