Tweets

In fact there's so much good stuff in here, and so many powerful and well researched points, that I would recommend that every single researcher in this field gets a copy of this.— Ann Memmott PgC MA (@AnnMemmott) September 12, 2022

Also, thanks for this:"There is no clear scientific basis for segmenting the autism spectrum [into] ‘severe’ or ‘profound’ autism... doing so poses grave risks, potentially excluding people deemed ‘severe’ or ‘profound’ from the concern, dignity & respect offered to others".Aye— Ann Memmott PgC MA (@AnnMemmott) September 12, 2022

New research. Autistic adults, and what researchers need to understand about meaningful goals for us and for our quality of life generally. Top team. Nature publication. My thanks to @liz_pellicano and colleagues. Some main points below/https://t.co/b6worbIqTC— Ann Memmott PgC MA (@AnnMemmott) September 12, 2022

"The researchers found that in datasets that required ADOS screening for eligibility, the ratio of male to female participants ended up being around 8:1, while in those that required only a community diagnosis the ratios ranged from about 2:1 to 1:1."1/5https://t.co/wHyoW6oMi0— AutisticSciencePerson, MSc (@AutSciPerson) September 12, 2022

For science to seem "legitimate," a lot of publishers will require that autistic people (even with a formal diagnosis) fill out something like the ADOS to be considered for a study. Ironically, what this does is make the literature more biased against marginalized genders.3/5— AutisticSciencePerson, MSc (@AutSciPerson) September 12, 2022

https://t.co/52DMdaoYtu— Stimpunks (@stimpunks) September 13, 2022

Heavy material but very eye opening. https://t.co/BwBsmdxv9i— Alice Bird (@BigBirdVibe) September 12, 2022

So, in summary, I am pleased that a team is reflecting on the vital part that kind, caring, strong leadership has.I would invite teams to also reflect on whose voices are missing, in such papers - and on how loved people and their homes are described.— Ann Memmott PgC MA (@AnnMemmott) September 11, 2022

Our #Tier4AFC curriculum for mental health professionals is coproduced by neurodivergent academics/professionals/experts by experience. This month I am joining forces with @AT_Autism experts for the first f2f delivery! @mairi_wickens @mum2aspergirl @richardmills18 @AnnMemmott pic.twitter.com/S7YkEDm0Pr— Dr Georgia Pavlopoulou (she/her) (@JoPavlopoulou) September 11, 2022

New research into how to get autistic people/people with learning disabilities out of forensic hospitals and into community.https://t.co/uHU546NzESI like parts of it. And I have questions about other parts/— Ann Memmott PgC MA (@AnnMemmott) September 11, 2022

New research into how to get autistic people/people with learning disabilities out of forensic hospitals and into community.https://t.co/uHU546NzESI like parts of it. And I have questions about other parts/— Ann Memmott PgC MA (@AnnMemmott) September 11, 2022

“The myth of normal is what’s broken.”@_JonathanMooney https://t.co/rpQfYF43WF— Stimpunks (@stimpunks) September 10, 2022

What is anti-racist Universal Design for Learning? w/ Tesha Fritzgeraldhttps://t.co/vuflHZqfTv— Human Restoration Project (@HumResPro) September 10, 2022

What is anti-racist Universal Design for Learning? w/ Tesha Fritzgeraldhttps://t.co/vuflHZqfTv— Human Restoration Project (@HumResPro) September 10, 2022

COVID-19 Vaccine Update!The new bivalent COVID-19 boosters are similar to the original Pfizer and Moderna vaccines but better tailored to fight the new Omicron variants, and they're available right now!— Erin Zwiener (@ErinForYall) September 9, 2022

Big layout changes and several new pieces of art. Feast your senses: https://t.co/G3zrbNrwnj— Stimpunks (@stimpunks) September 9, 2022

Thanks for your disability reporting, @alexdstuckey. We incorporate it into our Aid page.https://t.co/TqCfpUbirr— Stimpunks (@stimpunks) September 9, 2022

So where do these Texans with disabilities live? @HoustonChron reporter @alexdstuckey has broken down the waitlists by legislative district #TXlege‼️Most people are waiting for help in rural areas, where poverty rates are high and services are scarce.https://t.co/JWxHjGo70K— Anna Núñez (@nunez_anna) September 9, 2022

I was talking about this with @drdevonprice a few weeks ago: parents of autistic kids and #ActuallyAutistic people often think these benchmarks are because of rigorous testing. But then you see state agencies use arbitrary standards like IQ and it's infuriating. https://t.co/3n6dY7nRa4— Eric Michael Garcia (@EricMGarcia) August 23, 2022

With a 200k person waitlist, families are counseled to put their loved ones with intellectual and developmental disabilities on all 6 Medicaid waiver lists. What they’re not counseled for coming to the top of lists and being denied again and again https://t.co/5OagBDAUBa— Alex Stuckey 🐘 (@alexdstuckey) August 23, 2022

Dawson Reece was diagnosed with autism at age four. His mom put him on multiple waitlists just in case. He came to the top of a list in 2009 but didn’t qualify.2 yrs later, he was offered services but his parents made too muchIn 2015, his IQ was too high 4 a diff program— Alex Stuckey 🐘 (@alexdstuckey) August 23, 2022

For those who don't know, @alexdstuckey is doing some of the best reporting on Medicaid waivers. I learn a ton from her reporting (and I wrote a whole book about it). https://t.co/VNbfTVoaCe— Eric Michael Garcia (@EricMGarcia) August 23, 2022

As @alexdstuckey has reported in recent weeks, the waitlist for publicly funded services for disabled Texans is enormous and can be up to 20 years. In today's story she shows how the waiting process itself is arduous and one mother says is "broken." https://t.co/2c3tj0FRxW— Mizanur Rahman (@Mizanur_TX) August 23, 2022

Such critical reporting from @alexdstuckey Find out where most disabled Texans are waiting for help from Medicaid programs https://t.co/3UMIsfb5Cp) via @houstonchron— Yamil Berard (@yberard) September 9, 2022

Want to know how many people are waiting where you live?We’ve got you.Search your address here to find the numbers in your area — and the lawmakers to call to fix it https://t.co/oMlr6DGMEu @HoustonChron— Alex Stuckey 🐘 (@alexdstuckey) September 9, 2022

How does a provider who mandates every foster parent be Christian serve secular kids? Even though DFPS is planning to expand, there are no other options for Treatment Foster Care in 5 DFPS regions.This is particular worrying for LGBTQ youth who need affirming placements.— Erin Zwiener (@ErinForYall) September 8, 2022