"The Gift," by Gareth BaynamThree Aboriginal children hold the key for unlocking important medical insights.#genetics/genetic testing#genetic disease#research agenda/strategy#drug repurposing#patient-driven research#improving diagnosis"The Gift," by Gareth Baynam
"Not Strong At All," by Kim McClellanKim McClellan reflects on her lifelong battle with recurrent respiratory papillomatosis and learns how to use her voice to fight for change.#building a rare disease foundation#living with a rare disease#drug repurposing#social media/disease awareness"Not Strong At All," by Kim McClellan
"The Next Bomb To Drop," by Emily VenturaEmily Ventura is desperate to find answers about her baby’s mysterious illness.#parenting a child with a rare disease#improving diagnosis#drug repurposing#transplant"The Next Bomb To Drop," by Emily Ventura
Can We Fix It?This is a story about fixing an impossible problem in an unexpected way.#parenting a child with a rare disease#community engagement#social media/disease awareness#drug repurposing#patient-driven research#building a rare disease foundation#research networkCan We Fix It?