How My Bad Dating History Led to Me Being a Rare Disease AdvocateDo you know what happens when a Type A fixer turns into a rare disease mom warrior? Then have a listen!#genetic disease#parenting a child with a rare disease#genetics/genetic testing#scientific conference#community engagementHow My Bad Dating History Led to Me Being a Rare Disease Advocate
Navigating a World Not Built for UsAvery Roberts is breaking down barriers tackling misconceptions surrounding disability and giving a loud voice to the, often-forgotten, rare disease community.#living with a rare disease#community engagement#social media/disease awareness#patient-driven researchNavigating a World Not Built for Us
Rare Resilience: A Mother's Journey Through Kawasaki DiseaseA mother recounts her journey as her 3-year-old daughter battles Kawasaki disease, a rare and potentially life-threatening condition.#parenting a child with a rare diseaseRare Resilience: A Mother's Journey Through Kawasaki Disease
StrongA mother's journey with self-identity while navigating her two-year-old son's rare genetic epilepsy.#parenting a child with a rare disease#genetic diseaseStrong
Driving Miss DoriePrepare to be entertained by the thrilling saga of Dorie's fearless teenage driving escapades!#living with a rare disease#genetic diseaseDriving Miss Dorie