Tribes, long shut out from their own health data, fight for access and sovereignty
When Stephanie Russo Carroll, a citizen of the Native Village of Kluti-Kaah in Alaska, set out to earn her doctorate in tribal health 15 years ago, she focused her research on tribal cultural and health programs within six tribes. She needed vital statistics data, such as birth and death rates, for each of them. But […]
Decolonizing data : unsettling conversations about social research methods - Jacqueline M. Quinless
"Canada's colonial history continues to have a devastating impact on Indigenous peoples and communities. Decolonizing Data explores how ongoing structures of colonialization negatively impact the well-being of Indigenous peoples and communities across Canada, resulting in persistent health inequalities. In addressing the social dimensions of health, particularly as they affect Indigenous peoples and BIPOC communities, Decolonizing Data asks, should these groups be given priority for future health policy considerations? Decolonizing Data provides a deeper understanding of the social dimensions of health as applied to Indigenous peoples, who have been historically underfunded in and excluded from health services, programs, and quality of care; this has most recently been seen during the COVID-19 pandemic. Drawing on both Western and Indigenous methodologies, this unique scholarly contribution takes a sociological perspective, as well as the "two-eyed seeing" approach to research methods. By looking at the ways that everyday research practices contribute to the colonization of health outcomes for Indigenous peoples, Decolonizing Data exposes the social dimensions of healthcare, and offers a careful and respectful reflection on how to "unsettle conversations" about applied social research initiatives for our most vulnerable groups."--