Patient Anecdote thread on Twitter: Today I travelled 4000miles to get tested for Microclots to test the theory that this is causing my #longcovid symptoms. Turns out I have them. This testing needs to be made accessible to all those suffering around the world so they can be treated (1)
Detailed analysis thread on Twitter: 1/🧵 Micro Clots & Endothelial Dysfunction in Long COVID
Plus new Epidemiology in @JAMA_current some say proves #LongCOVID is a hoax⁉️
Truth is…endothelial dysfunction plus inflammation can lead to life-altering brain & body dz.
Let’s explore data
“One core question is: Do these microclots actually represent a root cause, or are they in response to something else that's ongoing?” says Michael VanElzakker PhD, co-founder of PolyBio Research Foundation, which is focused on studying viral reservoir:
Tiny, Menacing Microclots May Explain Long COVID’s Symptoms
Anecdote: Big news: I was lucky to get tested for micro blood clots, & I have a lot of them! #LongCovid
Healthy control blood on the left. Mine on the right. The green is all microclots!
These clots are likely blocking oxygen from getting around my body & could explain many symptoms. 1/
Develop an accessible, lab-based method to diagnose microclots in LongCovid patients Millions suffering from LongCovid don't have access to a regular test for diagnosis. Top researchers develop a widely available method to help explain the condition's debilitating symptoms.
This is starting to get frustrating ~ Another #LongCovid pt travels across the world to Germany & gets a simple blood test which reveals a clear biomarker - #MicroClots
The fact we still don’t have this simple test readily available is a failure. What are we waiting for??