Long Covid/PASC (general)

Morelaurieallee
#Anecdote #anecdote
‘We just want to be heard’: Long COVID patients still feel invisible - The Boston Globe
‘We just want to be heard’: Long COVID patients still feel invisible - The Boston Globe

“‘We just want to be heard’: Long COVID patients still feel invisible Scores of long COVID patients reached out to the Globe after a recent story on doctors finding new ways to manage the condition…more than 75 Boston Globe readers who reached out to share their experiences after reading a front-page story profiling a handful of doctors, including at the Brigham, who are using experimental treatments to help patients suffering from the little understood disease. Long COVID afflicts an estimated 7 percent of the population, or close to 18 million Americans.”

#Long Covid#Post-Acute Conditions#activism#Advocacy#Covid Statistics#anecdote
·bostonglobe.com·
‘We just want to be heard’: Long COVID patients still feel invisible - The Boston Globe
Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising
Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising

“Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising…she’s been living with ‘debilitating’ and ‘confusing’ symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) after model Shaun Ross posted on social media last month that he developed the condition after experiencing long COVID.”

Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising
#Long Covid#Post-Acute Conditions#POTS#anecdote
·huffpost.com·
Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising
.’s posted his follow up video to the first one he released, sharing his LongCovid. If you haven’t seen that one (link to the full video in the qt), definitely watch it first before clicking the link to watch the second in its fully 10min:
.’s posted his follow up video to the first one he released, sharing his LongCovid. If you haven’t seen that one (link to the full video in the qt), definitely watch it first before clicking the link to watch the second in its fully 10min:
Matt McGorry’s Long Covid story
#Matt McGorry#anecdote#Long Covid#Video#actors#Covid effects on the arts
·x.com·
.’s posted his follow up video to the first one he released, sharing his LongCovid. If you haven’t seen that one (link to the full video in the qt), definitely watch it first before clicking the link to watch the second in its fully 10min:
Did I not get the memo?
Did I not get the memo?
“Why do emergency department reports and hospital discharge summaries not mention that my patient tested positive for SARS-CoV-2 (or had “a really bad cold” or “the worst flu ever”) 1 month before they presented to hospital with weakness, falls, confusion, dyspnea, heart failure, acute kidney injury, or non–ST-elevation myocardial infarction? Doesn’t that seem relevant? It does to me.”pos
#Long Covid#Discussion#Post-Acute Conditions#organ damage#Anecdote#good doctors#prevention tips#consequences#CDC failure#minimizing and outright propaganda#Covid Isn't Over#lungs#Pneumonia#Brain#Heart#Heart Failure#Heart Attack#heart injury
·cmaj.ca·
Did I not get the memo?
this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her
this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her
“this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her”
#video#anecdote#Long Covid#CDC failure#Post-Acute Conditions
·x.com·
this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her
It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual.
It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual.

“It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual. THREE TIMES MORE.

50% of our referrals contracted COVID in 2024. Of those, half contracted COVID over summer 2024.

COVID prevention is the only to way to prevent Long COVID. We have to do better.”

#Long Covid#resources#anecdote#Covid Statistics#Discussion
·x.com·
It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual.
After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it? : r/AskReddit
After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it? : r/AskReddit

Go to AskReddit r/AskReddit jnny_lkahohfa Join After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it?

Go to AskReddit r/AskReddit jnny_lkahohfa ADMIN MOD After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it?
#long covid#Post-Acute Conditions#organ damage#anecdote#Discussion#Covid Is Not Over Newsletter
·reddit.com·
After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it? : r/AskReddit
Jane's Addiction's Dave Navarro Speaks Of His Battle With Long COVID - Theprp.com
Jane's Addiction's Dave Navarro Speaks Of His Battle With Long COVID - Theprp.com
“…not feeling like I had recovered, which led to being home quite a bit, which led to isolation, which led to depression, all those kinds of things. And it was just a pretty miserable experience for several years. And going to different doctors, trying different methods, holistic methods, Western methods. Some doctors claim that they’re specialists. Others claim that there is no way to test for long Covid, and then there was still a lot of skepticism about it being a real thing, at the time.”
not feeling like I had recovered, which led to being home quite a bit, which led to isolation, which led to depression, all those kinds of things. And it was just a pretty miserable experience for several years. And going to different doctors, trying different methods, holistic methods, Western methods. Some doctors claim that they’re specialists. Others claim that there is no way to test for long Covid, and then there was still a lot of skepticism about it being a real thing, at the time.
#long covid#Dave Navarro#Post-Acute Conditions#anecdote
·theprp.com·
Jane's Addiction's Dave Navarro Speaks Of His Battle With Long COVID - Theprp.com
Eighties pop pioneer looks unrecognisable - but who is it?
Eighties pop pioneer looks unrecognisable - but who is it?

Simply Red singer Mick “revealed he's suffering with long COVID and is struggling with the after-effects of the virus.

Speaking to The Sun, Mick told how he suffers with heart palpitations and insomnia, explaining how he often wakes up in the middle of the night 'with my heart going ba-boom, ba-boom.'”

Last year, Mick revealed he's suffering with long COVID and is struggling with the after-effects of the virus. Speaking to The Sun, Mick told how he suffers with heart palpitations and insomnia, explaining how he often wakes up in the middle of the night 'with my heart going ba-boom, ba-boom.'
#long covid#anecdote
·dailymail.co.uk·
Eighties pop pioneer looks unrecognisable - but who is it?
I spoke to recently about my experience with Long Covid. I feel very grateful to be able to tell my story - so many people are suffering without a voice or the support they need. Progress is happening but *so* much more needs to be done.
I spoke to recently about my experience with Long Covid. I feel very grateful to be able to tell my story - so many people are suffering without a voice or the support they need. Progress is happening but *so* much more needs to be done.
#long covid#anecdote#Oonagh Cousins
·x.com·
I spoke to recently about my experience with Long Covid. I feel very grateful to be able to tell my story - so many people are suffering without a voice or the support they need. Progress is happening but *so* much more needs to be done.