Long Covid/PASC (general)

“Update on my protocol. I spent approx. 2 weeks with a special ChatGPT prompt to create my individual Long Covid & ME/CFS treatment plan. It’s a massive plan with a 4 week introduction phase. After that first real benefits should be visible after 3 months and long lasting benefits after around 12 months. Maybe it’s risky - but I am declining slowly anyway. So, I will give it a try. My last attempt - if this is not successful, so be it.

But as I said, I see already changes (10 days in) My Lunalae is coming back on my thumbs, my wound healing is faster, less cold hands and my skin / scalp is less itchy and better heart rate while standing.

But there are also things what I would call “side effects” like pain and additional exhaustion. But I will hang in there.

I don’t know what it will bring. But why should I wait ? For what ? When ? We are loosing our lives NOW.

I will update you regularly.”

“I’m going to share a cautionary story of what happens when you don’t take the ongoing pandemic seriously. Come trot with me on the journey of a high profile, anti masker who has long C. In early ‘22 this person was transparent about having memory loss issues after having C19.”

On Tilda Swindon:

“Professional goalkeeper⚽️for West Ham, Sophie Hillyerd, contracted SARS-CoV-2 in September of 2021.

She developed Long COVID & autonomic issues because of it, which was ongoing at last a year later. She said it's like nothing she's ever experienced…” Thread:

“Between 2% and 14% of COVID survivors develop a syndrome called postural orthostatic tachycardia syndrome (POTS) (1).

However, it is commonly attributed to stress and anxiety.

This is the surprising story of how POTS (and possibly Long COVID) might be linked to an even rarer syndrome...🧵”

Demystifying Long COVID International Conference 2024.

Mini-thread as most content is repeated from earlier this year. 🧵”

“Heart attacks🫀in people under 40 have risen 66% since the beginning of the COVID pandemic. COVID is a vascular disease

COVID can affect the cardiovascular system by increasing blood stickiness, which raises the likelihood of blood clot formation.”

“If 20% of those infected get Long COVID, and 37% of those quit work due to the symptoms, that’s over 7% of the people catching COVID that leave the workforce and school. (See Stanford study linked below)

That is a staggering number.

Let’s sanity check that. Figure some 60% of the population has been infected in the last year. So out of the workforce of 150m that would mean some 90m were infected and over 6m would have left the workforce from debilitating Long COVID just in the last year.

While that is a depressingly large number, it does match up with earlier surveys that estimated between 18-22m had left the workforce due to Long COVIS and never returned since the start of the pandemic almost five years ago.

So yes, those are huge numbers which comprise a huge drag on the US economy. It would be WAY cheaper to develop and deploy new vaccines and air quality improvements, even on a national scale. (And it would save a lot of lives and livelihoods as well.)

But worst thing about our current lackadaisical approach to public health, is that the damage is ongoing and will continue until we force our leaders to do something about it.”

“L0NG C0VID is not a simple yes or no; it exists on a spectrum that ranges from asymptomatic today to severe, with many nuances in between(Personal simplified perspective):

1. Asymptomatic: You may feel fine now, but future health issues could emerge in months or years to come.

2. Mild: You can carry out your daily tasks but face challenges that you might try to conceal from others.

3. Moderate: Your ability to perform everyday activities, such as work, sports, and hobbies, is noticeably affected, requiring adjustments to your routine.

4. Severe: You are bedridden and unable to function normally.

🔥Each new reinfection can increase the risk of developing Long COVID, potentially worsening the condition for those already suffering. And remember, LC has NO TREATMENT, NO CURE today, only some possible symptomatic relief at best.”

“It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual. THREE TIMES MORE.

50% of our referrals contracted COVID in 2024. Of those, half contracted COVID over summer 2024.

COVID prevention is the only to way to prevent Long COVID. We have to do better.”

“This implies that some people may be genetically predisposed to developing post-viral syndromes after COVID-19.

Overall, these findings provide important insights into the genetic basis of Long COVID.

“HEALTH UPDATE:

It has officially been one year since I contracted Covid-19 while on set for my movie that I’ve been working on.

I was once a very healthy 31-year old man, but now every day is a struggle for me.

A THREAD... 🧵”