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‘The pandemic isn’t over’: my year of long Covid – video
‘The pandemic isn’t over’: my year of long Covid – video
“Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and involved parent he wants to be to his two children. The Guardian has spent a year with Darren and his family to document his journey as he tries to recover from long Covid and come to terms with his new reality”
Darren Parkinson is one of about 2 million people living with long Covid in England and Scotland. The illness is having a detrimental impact on his life, stopping him from being the kind of active and involved parent he wants to be to his two children. The Guardian has spent a year with Darren and his family to document his journey as he tries to recover from long Covid and come to terms with his new reality
#Long Covid#Darren Parkinson#Post-Acute Conditions#anecdote#VIdeo
·theguardian.com·
‘The pandemic isn’t over’: my year of long Covid – video
Professional goalkeeper⚽️for West Ham, Sophie Hillyerd, contracted SARS-CoV-2 in September of 2021.
Professional goalkeeper⚽️for West Ham, Sophie Hillyerd, contracted SARS-CoV-2 in September of 2021.

“Professional goalkeeper⚽️for West Ham, Sophie Hillyerd, contracted SARS-CoV-2 in September of 2021.

She developed Long COVID & autonomic issues because of it, which was ongoing at last a year later. She said it's like nothing she's ever experienced…” Thread:

#Long Covid#Post-Acute Conditions#Discussion#anecdote#athlete
·x.com·
Professional goalkeeper⚽️for West Ham, Sophie Hillyerd, contracted SARS-CoV-2 in September of 2021.
What Happened to Physics Girl? Living With Long COVID - OMF
What Happened to Physics Girl? Living With Long COVID - OMF

“Physics Girl’s illness is marked by a range of debilitating symptoms that disrupt even the simplest aspects of daily life. She battles extreme fatigue, a persistent and overwhelming exhaustion that never seems to fade, no matter how much rest she gets. In addition, she suffers from severe brain fog, making it difficult to concentrate or perform basic cognitive tasks. Activities that once came naturally, such as researching scientific concepts or filming videos, now feel insurmountable. Moreover, she experiences sensory hypersensitivities to light, sound, and odors, which exacerbate her discomfort and limit her ability to engage with the world around her.

Dianna also experiences muscle pain and other physical limitations.”

Physics Girl’s illness is marked by a range of debilitating symptoms that disrupt even the simplest aspects of daily life. She battles extreme fatigue, a persistent and overwhelming exhaustion that never seems to fade, no matter how much rest she gets. In addition, she suffers from severe brain fog, making it difficult to concentrate or perform basic cognitive tasks. Activities that once came naturally, such as researching scientific concepts or filming videos, now feel insurmountable. Moreover, she experiences sensory hypersensitivities to light, sound, and odors, which exacerbate her discomfort and limit her ability to engage with the world around her. Dianna also experiences muscle pain and other physical limitations.
#Long Covid#Post-Acute Conditions#Physics Girl#Anecdote#Dianna Cowern
·omf.ngo·
What Happened to Physics Girl? Living With Long COVID - OMF
On certain days, I never know when this will happen, I have a crash. I'll describe this in as much detail as I can. It always involves deep fatigue. Sometimes I can't keep my eyes open or struggle to. Sometimes I can't lift my arms or stand up.
On certain days, I never know when this will happen, I have a crash. I'll describe this in as much detail as I can. It always involves deep fatigue. Sometimes I can't keep my eyes open or struggle to. Sometimes I can't lift my arms or stand up.
“On certain days, I never know when this will happen, I have a crash. I'll describe this in as much detail as I can. It always involves deep fatigue. Sometimes I can't keep my eyes open or struggle to. Sometimes I can't lift my arms or stand up.”
#Long Covid#Post-Acute Conditions#Fatigue#Weakness#Anecdote#cognitive disability#cognition#Memory#memory loss#working memory#emotional lability#PEM#Dizziness
·x.com·
On certain days, I never know when this will happen, I have a crash. I'll describe this in as much detail as I can. It always involves deep fatigue. Sometimes I can't keep my eyes open or struggle to. Sometimes I can't lift my arms or stand up.
Anyone else have musical auditory hallucinations w ? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.
Anyone else have musical auditory hallucinations w ? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.
“Anyone else have musical auditory hallucinations w #LongCovid? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.”
#Brain#Long Covid#Post-Acute Conditions#auditory hallucinations#object recognition#anecdote
·x.com·
Anyone else have musical auditory hallucinations w ? Also having more trouble identifying objects (as in I see a shape of something and briefly think it is something else). Coming up on year 5 & the brain damage seems pretty progressive.
Why scientists say every new infection puts you at risk of getting long COVID
Why scientists say every new infection puts you at risk of getting long COVID
“The 34-year-old Overland Park pharmacist is one of 17 million Americans battling long COVID, an amorphous constellation of symptoms that scientists are only beginning to understand and most doctors are struggling to treat.”
The 34-year-old Overland Park pharmacist is one of 17 million Americans battling long COVID, an amorphous constellation of symptoms that scientists are only beginning to understand and most doctors are struggling to treat.
#Long Covid#Post-Acute Conditions#reinfection#anecdote#risks
·cjonline.com·
Why scientists say every new infection puts you at risk of getting long COVID
Between 2% and 14% of COVID survivors develop a syndrome called postural orthostatic tachycardia syndrome (POTS) (1).
Between 2% and 14% of COVID survivors develop a syndrome called postural orthostatic tachycardia syndrome (POTS) (1).

“Between 2% and 14% of COVID survivors develop a syndrome called postural orthostatic tachycardia syndrome (POTS) (1).

However, it is commonly attributed to stress and anxiety.

This is the surprising story of how POTS (and possibly Long COVID) might be linked to an even rarer syndrome...🧵”

#Long Covid#POTS#Postural Orthostatic Tachycardia Syndrome#Post-Acute Conditions#Brain Inflammation#Brain#brain injury#inflammation#Ehlers-Danlos syndrome#anecdote#Discussion#analysis
·x.com·
Between 2% and 14% of COVID survivors develop a syndrome called postural orthostatic tachycardia syndrome (POTS) (1).
I developed long covid & my dad died after our covid infection JUST LAST YEAR. There have been over a million dead from COVID during your presidency, w tens of millions disabled. This is what our family looked like a year AFTER you declared the pandemic over:
I developed long covid & my dad died after our covid infection JUST LAST YEAR. There have been over a million dead from COVID during your presidency, w tens of millions disabled. This is what our family looked like a year AFTER you declared the pandemic over:
“I developed long covid & my dad died after our covid infection JUST LAST YEAR. There have been over a million dead from COVID during your presidency, w tens of millions disabled. This is what our family looked like a year AFTER you declared the pandemic over:
#Long Covid#Discussion#Post-Acute Conditions#Mortality#anecdote#Chris Alvino#like minds#Joe Biden#CDC failure#media and government lies#minimizing and outright propaganda
·x.com·
I developed long covid & my dad died after our covid infection JUST LAST YEAR. There have been over a million dead from COVID during your presidency, w tens of millions disabled. This is what our family looked like a year AFTER you declared the pandemic over:
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as , and chronic /tick- and vector-borne illness. Let’s start with a trip down memory lane. 🧵 1/
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as , and chronic /tick- and vector-borne illness. Let’s start with a trip down memory lane. 🧵 1/
“Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as #MECFS, #LongCOVID and chronic #Lyme /tick- and vector-borne illness. Let’s start with a trip down memory lane. 🧵 1/“
#Long Covid#Post-Acute Conditions#POTS#PEM#Treatment#Treatment guidelines#anecdote#Putrino Lab
·x.com·
Feels like a good time for a thread about all things exercise for people living with infection (and exposure)-associated complex chronic illnesses (IACCs) such as , and chronic /tick- and vector-borne illness. Let’s start with a trip down memory lane. 🧵 1/
Newsmax host 'I know people with Long Haul Covid, and the doctors don't seem to be able to help her.' There's no standard protocol, we treat symptom by symptom.
Newsmax host 'I know people with Long Haul Covid, and the doctors don't seem to be able to help her.' There's no standard protocol, we treat symptom by symptom.
“Newsmax host 'I know people with Long Haul Covid, and the doctors don't seem to be able to help her.' There's no standard protocol, we treat symptom by symptom.”
#Long Covid#Post-Acute Conditions#Video#anecdote#Discussion
·x.com·
Newsmax host 'I know people with Long Haul Covid, and the doctors don't seem to be able to help her.' There's no standard protocol, we treat symptom by symptom.
‘We just want to be heard’: Long COVID patients still feel invisible - The Boston Globe
‘We just want to be heard’: Long COVID patients still feel invisible - The Boston Globe

“‘We just want to be heard’: Long COVID patients still feel invisible Scores of long COVID patients reached out to the Globe after a recent story on doctors finding new ways to manage the condition…more than 75 Boston Globe readers who reached out to share their experiences after reading a front-page story profiling a handful of doctors, including at the Brigham, who are using experimental treatments to help patients suffering from the little understood disease. Long COVID afflicts an estimated 7 percent of the population, or close to 18 million Americans.”

#Long Covid#Post-Acute Conditions#activism#Advocacy#Covid Statistics#anecdote
·bostonglobe.com·
‘We just want to be heard’: Long COVID patients still feel invisible - The Boston Globe
Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising
Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising

“Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising…she’s been living with ‘debilitating’ and ‘confusing’ symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) after model Shaun Ross posted on social media last month that he developed the condition after experiencing long COVID.”

Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising
#Long Covid#Post-Acute Conditions#POTS#anecdote
·huffpost.com·
Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising
.’s posted his follow up video to the first one he released, sharing his LongCovid. If you haven’t seen that one (link to the full video in the qt), definitely watch it first before clicking the link to watch the second in its fully 10min:
.’s posted his follow up video to the first one he released, sharing his LongCovid. If you haven’t seen that one (link to the full video in the qt), definitely watch it first before clicking the link to watch the second in its fully 10min:
Matt McGorry’s Long Covid story
#Matt McGorry#anecdote#Long Covid#Video#actors#Covid effects on the arts
·x.com·
.’s posted his follow up video to the first one he released, sharing his LongCovid. If you haven’t seen that one (link to the full video in the qt), definitely watch it first before clicking the link to watch the second in its fully 10min:
Did I not get the memo?
Did I not get the memo?
“Why do emergency department reports and hospital discharge summaries not mention that my patient tested positive for SARS-CoV-2 (or had “a really bad cold” or “the worst flu ever”) 1 month before they presented to hospital with weakness, falls, confusion, dyspnea, heart failure, acute kidney injury, or non–ST-elevation myocardial infarction? Doesn’t that seem relevant? It does to me.”pos
#Long Covid#Discussion#Post-Acute Conditions#organ damage#Anecdote#good doctors#prevention tips#consequences#CDC failure#minimizing and outright propaganda#Covid Isn't Over#lungs#Pneumonia#Brain#Heart#Heart Failure#Heart Attack#heart injury
·cmaj.ca·
Did I not get the memo?
this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her
this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her
“this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her”
#video#anecdote#Long Covid#CDC failure#Post-Acute Conditions
·x.com·
this is a very emotional town hall. Harris takes a question from a homeless woman whose life was wrecked by long covid about what she'll do for people like her
It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual.
It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual.

“It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual. THREE TIMES MORE.

50% of our referrals contracted COVID in 2024. Of those, half contracted COVID over summer 2024.

COVID prevention is the only to way to prevent Long COVID. We have to do better.”

#Long Covid#resources#anecdote#Covid Statistics#Discussion
·x.com·
It’s only October 11th and we now have 3x the number of referrals to our Long COVID clinic than usual.
After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it? : r/AskReddit
After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it? : r/AskReddit

Go to AskReddit r/AskReddit jnny_lkahohfa Join After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it?

Go to AskReddit r/AskReddit jnny_lkahohfa ADMIN MOD After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it?
#long covid#Post-Acute Conditions#organ damage#anecdote#Discussion#Covid Is Not Over Newsletter
·reddit.com·
After all these years, did any of you get any type of permanent damage from getting covid? If so, what is it? : r/AskReddit