“So I did what the journalist should have done. I went looking for some data. We all know that doctors and nurses and everyone else in healthcare are sicker now than five years ago, right? I mean, you do, don't you? That across all the massive workforce of the NHS, sickness absence rates are now 25% higher than the pre-pandemic average? Right?”
“Update on my protocol. I spent approx. 2 weeks with a special ChatGPT prompt to create my individual Long Covid & ME/CFS treatment plan. It’s a massive plan with a 4 week introduction phase. After that first real benefits should be visible after 3 months and long lasting benefits after around 12 months. Maybe it’s risky - but I am declining slowly anyway. So, I will give it a try. My last attempt - if this is not successful, so be it.
But as I said, I see already changes (10 days in) My Lunalae is coming back on my thumbs, my wound healing is faster, less cold hands and my skin / scalp is less itchy and better heart rate while standing.
But there are also things what I would call “side effects” like pain and additional exhaustion. But I will hang in there.
I don’t know what it will bring. But why should I wait ? For what ? When ? We are loosing our lives NOW.
I will update you regularly.”
“I hate how much #LongCovid has messed up my brain, and particularly my short-term memory.
This evening, I needed to go to the toilet. So, I dragged myself to the bathroom. Once I got there, I forgot why I was there.
Since I was there, I went in and washed my hands…Then I stumbled back to the couch. 5 minutes later I find that I am now urgently needing the toilet. Dragged myself back to the bathroom.
Now I’m really confused. I remember that I’d just washed my hands, so I assume I had also gone to the toilet. I hadn’t. FFS.”
“Hi, I’m Hannah. This is my story about COVID changing my life. This will be a thread, so here we go:
I got COVID in 2020 (during the first wave, months and months before the vaccine was released) at the age of 23. I am now 28 years old, and I spend every day in a bed.”
“Professional goalkeeper⚽️for West Ham, Sophie Hillyerd, contracted SARS-CoV-2 in September of 2021.
She developed Long COVID & autonomic issues because of it, which was ongoing at last a year later. She said it's like nothing she's ever experienced…” Thread:
“Physics Girl’s illness is marked by a range of debilitating symptoms that disrupt even the simplest aspects of daily life. She battles extreme fatigue, a persistent and overwhelming exhaustion that never seems to fade, no matter how much rest she gets. In addition, she suffers from severe brain fog, making it difficult to concentrate or perform basic cognitive tasks. Activities that once came naturally, such as researching scientific concepts or filming videos, now feel insurmountable. Moreover, she experiences sensory hypersensitivities to light, sound, and odors, which exacerbate her discomfort and limit her ability to engage with the world around her.
Dianna also experiences muscle pain and other physical limitations.”
“Between 2% and 14% of COVID survivors develop a syndrome called postural orthostatic tachycardia syndrome (POTS) (1).
However, it is commonly attributed to stress and anxiety.
This is the surprising story of how POTS (and possibly Long COVID) might be linked to an even rarer syndrome...🧵”
“‘We just want to be heard’: Long COVID patients still feel invisible Scores of long COVID patients reached out to the Globe after a recent story on doctors finding new ways to manage the condition…more than 75 Boston Globe readers who reached out to share their experiences after reading a front-page story profiling a handful of doctors, including at the Brigham, who are using experimental treatments to help patients suffering from the little understood disease. Long COVID afflicts an estimated 7 percent of the population, or close to 18 million Americans.”
“Solange Says She’s Living With This ‘Debilitating’ Condition — And Diagnoses Are Rising…she’s been living with ‘debilitating’ and ‘confusing’ symptoms of Postural Orthostatic Tachycardia Syndrome (POTS) after model Shaun Ross posted on social media last month that he developed the condition after experiencing long COVID.”