Beyond all reason
“Long COVID patients are constantly harangued about our requests for COVID safety. Yet what we're asking for is far less than what we're called on to do to survive.”ju
Homebound & down
Long COVID patients among those likely to be targeted under new Medicaid work requirements
My Year of Rest and Relaxation
“In honor of being too sick to get out of bed today, resharing the piece I wrote for my one year anniversary of living with Long COVID. I tried to describe what it’s like to become homebound and have to learn to find joy here.”
The Great Abandonment
“For those who have not yet lived the two types of lives I’ve lived since 2020, they really can’t imagine how much easier it is to be (relatively) abled and masked vs. very disabled with Long COVID and stuck at home, mostly in bed.”
Into Darkness
“Long COVID patients have been in hell since 2020. Now the distant light at the end of the tunnel - billions of dollars in future clinical studies - is being extinguished too.”
Long COVID patients have been in hell since 2020. Now the distant light at the end of the tunnel - billions of dollars in future clinical studies - is being extinguished too.